Bladder plaque calcification

I’m sorry you have to go through that on a continuous basis. I had one shot of Mytomycin and had severe bladder calcification. I was in severe pain and burning, frequent urination, and urethral pain. If I have to go i when there is no bathroom available I have to go outside (I am a woman, age 63). I get up several times a night. My pain has alleviated mostly except in the urethra. But my bladder is damaged, I have to go a lot and my bladder holds very little.
In my case, I went to Sloan Kettering in NY (I live in NY) and they seemed to not know what to do. There was no scraping or removal. I was told I may lose my bladder. They told me to wait and see what happens. Fortunately it mostly healed , I believe. I wish you the best and I hope your cancer does not recur. Mine hasn’t after 1.5 years. Please let me know how you are doing

I have been finding a little more info. Other research by same group has found similar but distinct DNA in calcifications in other body parts. Getting my head around it slowly.

For a little light reading on the bladder; www.ncbi.nlm.nih.gov/pmc/articles/PMC2626932/pdf/IJN-3-385.pdf

I don't have anything to add, as I've never head of calcification like this, but just wanted to say I live in Maine too (Bangor). I've just been treated by a local urologist, as I've got a very uncomplicated situation with regard to bladder cancer. However, if I were in your shoes I wouldn't hesitate to go out of state to get some answers. Best of luck finding out the source of this and getting rid of it. Is calcification of this type something that happens only in the bladder, or does it occur elsewhere as well?

Ann

Thank you for your responses. I have been to the big one in Maine, Maine Medical Center as well as other local. Boston is a possibility.
In many ways I may be looking for a lab more than a physician. The most detailed paper I have found simply says an extended culture in a "special medium" is required to get a successful culture of a nano type of bacteria. It is not that I am convinced that I have this type, I just do not see any other possibility with a treatment option.