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It Might Be Back

12 years 5 months ago #39891 by Alan
Replied by Alan on topic It Might Be Back
Cynthia wrote:
To add what Cyhthia said there was a trial done and finished acouple of years ago on a ?myco-bacterial" treatment similar to BCG that does about the same thing and was very successful. Beyond that I have no idea what the current status is.

www.clinicaltrials.gov/ct2/show/NCT00406068?show_locs=Y#locn
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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12 years 5 months ago #39882 by DougG
Replied by DougG on topic It Might Be Back
Jack,

Prayers are for benign or low grade. Bladder cancer REALLY sucks.

Anita and Doug
Anita
Forum Moderator
Caregiver

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12 years 5 months ago #39881 by CatherineH
Replied by CatherineH on topic It Might Be Back
Jack... this is distressing news. I sincerely hope it is a small bump in the road that can be treated and taken care of quickly. I couldn't agree more that BC sucks!
Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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12 years 5 months ago #39879 by Moonerj
Replied by Moonerj on topic It Might Be Back
Cynthia, there are a few options if I do have a recurrence.
If low or high grade, I will have 1 instillation of chemo immediatelty following Turbt. If the recurrence is TA high grade, then alot of thought will need to be given regarding treatment. At that point I will be moving to Dr. Jewett who I know personally now because of BCC. Dr O'Donnell and Dr Lamm are both great docs and both respond to patient emails.
Thanks for your kind thoughts and advice,
Hugs,
Jack
TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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12 years 5 months ago #39878 by Cynthia
Replied by Cynthia on topic It Might Be Back
Jack I sometimes think that the roller coaster that becomes your life when living with bladder cancer is worse than any of the treatments or tests. I am sorry you are having this scare and hope it is not a recurrence. Have you done any research into Interferon or the other agents being used when BCG can not? I know you are in Canada but having your doctors consult with
Michael A. O'Donnell of the University of Iowa might be a good idea if there is need. He has done a lot of research into non invasive and options outside of BCG.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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12 years 5 months ago #39877 by sara.anne
Replied by sara.anne on topic It Might Be Back
Oh Jack, that is scary. We will keep really good thoughts and
hope that it is "just" a UTI!!!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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