I agree that your primary care doc and uro should consult on this.
However, BCG is NOT a bad treatment (been there, done that) and is often a very effective treatment for CIS. Nothing else has been shown to be as effective, and this CAN be a very dangerous, aggressive cancer.
BCG generally causes fatigue and burning, after the immediate discomfort of the first few hours post-treatment. The side effects do get a little more persistent as the treatments go on...this is exactly what we want to happen...we want our bladders to get really "angry" and fight the CIS. Rarely there are some worse side effects...even aspirin has some!!!
Your doctor can reduce the dose if the side effects become too intolerable. By the time I finished my course, we were down to 1/3 the starting dose....some go as low as 1/10.
This treatment is a walk-in-the-park compared to the usual chemotherapy regimens that patients with other, systemic, cancers have to undergo. We should all be thankful that a treatment like this is available.
Those of us who have had BCG are here to answer your questions and give advice!!!
Sara Anne