One year after all the surgeries and treatments

Jodie i have read of cases of this occuring after Mitomycin C and also BCG.
www.actasurologicas.info/v33/n04/ENG/3304NC04.htm
Another former poster here had the same thing and had to have a cystectomy only because her bladder just would not hold anything.
I hope its somehow reversible and you have a good outcome.
pat

well last friday I finally got to have a ct scan, showed up that I have a thickening bladder wall, caused through a recent episode of cystitis, am now being booked back in for a cysto to see whats happening inside the bladder, can not have mitomycin c ever again and they aren't even going to try the bcg treatment. They are now talking about removal of the bladder as it has been 10 years fighting this. I am on medication in patch form, although it is helping I really have to push to relieve myself, it feels like my bladder has become constipated.

my 2nd TURBT was done 6 days ago...the burning and sizzling was gone by Thursday...seek a 2nd opinion....GREAT NEWS on the sll clear...hope it never comes back...God Bless...

steve

Jodie.....you obviously cannot take Mitomycin C. Do you have a urologist? Serious bladder contracture can happen with this drug
Intravesical Instillation
Bladder fibrosis/contraction reported;100 d may require cystectomy.100 d

Asymptomatic ulcers at the site of resected carcinoma of the bladder109 110 111 and calcification of bladder wall reported.112

Possible local irritation (i.e., cystitis); local toxicity increases with the number and frequency of instillations and with the dose administered.115
Here's one place to consider a second and very quick second opinion...you need help NOW.
www.urologycentre.net.au/
pat

Hi I am new to this site, I live in Adelaide South Australia, I am 41 years old and female. I was diagnosed wrongly 10 years ago with a bladder infections, turns out it was superficial grade 1 tumor on the lining of the bladder, 4 tumors actually. I have had reoccurances every year. In 2006 I had mitomycin c treatment and was clear until march this year. I had the same tratment on 8th April and have had complications ever since. I have had no sleep in 8 weeks, on the 3 rd day after surgery I went to the toilet 180 times in 12 hours and only peeing 10- 15 mls at a time, returned to the emergency department, prescribed medication and sent home. two weeks later I returned and they still haven't looked at my bladder. things are not improving. I was not told there could be severe complications only that I may have a little burning pain and frequency but this should clear in a few days. I am now taking legal action against the hospital for their lack of duty to help me as still today no one has looked at my bladder.

Had the treatments BCG and Chemo --- I agree with the others get another doctor if you can --- the pain should be dealt with --- sorry Doc whoever you may be --- the old Padre Herb†