hello all,
first, thank you all so much for being here, we are really newbies on this, and find ourselves flailing around a bit looking for information
if my questions have been asked and answered here before, please just point me to the relevant thread, thanks in advance
apologies upfront for presenting a lot of info and a lot of questions a bit breathlessly, I am sorry for that, it's becos I am feeling a bit overwhelmed as the sole support and assistance in this, and want to be sure I do the best for my mom that I can
the bladder cancer: my mom, 87 yrs young, just underwent a TU resection, the mass was a T1, high grade, with no muscle involvement (gross haematuria w/out pain or difficulty urinating was the initial symptom)
she is going to be starting the 6 week BCG therapy next week, if her ct scan tomorrow goes as expected wrt to lymph nodes, kidneys, etc (no further invasion expected)
other possibly relevant medical info on her; in addition to the bladder cancer, my mom has hypertension (controlled with medication), is taking meds for hypothyroidism, is on oxygen with the underlying pulmonary issues not yet fully determined/diagnosed, and recently had a stubborn hyperkalemic episode with elevated creatinine that required hopsitalisation to resolve
my questions concern the typical, expected setting and management of the BCG therapy sessions - the plan, as we understand it, is for the instillations to take place at the dr's office, but that she will then be sent home to retain the solution as long as she can up to 2 hours (rotating her position at 15 minute intervals), then expel, taking precautions to add bleach to the urinary void before flushing the toilet, guard against splashing/spotting of the urine, and to sterilise the bathroom after voiding of the urine w/ solution is complete
does anyone here with experience know if this is the normal protocol? how challenging is the process to someone older and less able/mobile?
the follow-on questions here have been left as messages with a nurse navigator and some other support personnel in the dr's office and hospital system, but as yet have not heard back, so thought I would try here - if these are beyond the scope of the forum, that's okay, will keep trying with local sources, but thought I would at least put them out here and see what others' experiences might have been
I see that in some countries (other than the usa), patient instructions indicate that the patient remains in the clinical setting until after the initial void of live solution, since it is considered a biohazard (my sister underwent breast cancer treatment in germany and had follow up care in france) - we have nearly an hour's (sometimes an hour or more w/ traffic) ride home from the dr's office, is there a chance my mom will be unable to wait to get home for the initial void?
also, since I will be the person assisting my mother, and I have several chronic auto-immune diseases that render my immune system somewhat compromised, should I be taking extra precautions? should I not be the primary assisting person? should we look at enlisting some other/additional help?
I hope this isn't too much of a niagara of info and questions for my initial post, as I say I am really a newbie with this and probably ditzing out more than a little trying to keep my full set of plates spinning -
thanks everyone for any help and information !!!
also, very best to everyone here, will keep you all in our prayers and thanks again for being here,
kitts