Ta High Grade - Questions

17 years 2 months ago #3750 by wendy
Replied by wendy on topic Ta High Grade - Questions

Sure he does long distance consulting and would be much more able to help if he knew the complete history. Here's some links:
You can track O'Donnell via the U of Iowa site:
www.uihealthcare.com/depts/med/urology/urologymds/odonnell.html

Webcafe's info on him
blcwebcafe.org/board/m-odonnell.asp

and our page about his treatments with interferon+BCG:
blcwebcafe.org/interferon.asp

If you let him know I've already wrote him about your husband good chance he will get back to you promptly. He's a good one to get a second opinion from.

Best,
Wendy

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17 years 2 months ago #3749 by skypilot
Replied by skypilot on topic Ta High Grade - Questions
I need to add I was supose to have 6 treatment on interferon but only did 4 due to what may have been areaction. It still worked. Don

Hanging in there!

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17 years 2 months ago #3748 by susanb
Replied by susanb on topic Ta High Grade - Questions
Wow, Don. That's wonderful! And it's really encouraging to hear for me as well.

I hope that your 3 month check goes well.

Susan

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17 years 2 months ago #3746 by skypilot
Replied by skypilot on topic Ta High Grade - Questions
 I did not have any success with 6 treatments of BCG, Still had T-1 and still had high grade insitu. That uro was wanted my organs, I got with a cancer center that uro used interferon and 10 percent BCG for a complete clear of tumers and high grade insitu. I go in for my 3 month check march 13, They will have alook and see how it is doing. Thses past 3 months of freedom have been greta. Don

Hanging in there!

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17 years 2 months ago #3745 by susanb
Replied by susanb on topic Ta High Grade - Questions
Thanks, Wendy.  :) It is interesting to hear that Dr. O'Donnell said that. After reading what everyone has said about a second opinion, I am planning on starting by talking with my husband's doctor directly (I have not had a full conversation with him myself) and with the friend of a friend who is a cancer specialist. Depending on what they have to say, perhaps it may be good to have Dr. O'Donnell take a look at his case. Do you know if he does long distance consulting? If so, is it difficult to get an appointment (and one that is soon)?

I really appreciate you - and everyone else - going out of their way to consider our BC issues. It is reassuring to have some feedback!

Susan

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17 years 2 months ago #3743 by wendy
Replied by wendy on topic Ta High Grade - Questions
Hi Susan,

I was confused after reading your message so I asked Dr. O'Donnell his opinion of the situation, he replied he would treat with BCG+interferon.

BCG did not live up to its reputation in your husband's case, I would think. Although Dr. Lamm says it can take up to 6 months to do it's full job...

O'Donnell's rx could be worth asking about. There is more info on this here:
blcwebcafe.org/interferon.asp

Second opinions at this point couldn't hurt.

All the best,
Wendy

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