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After 10 years it\'s CIS

13 years 2 months ago #36220 by Nix
Replied by Nix on topic After 10 years it\'s CIS
From what I have read here, and my own body's response, BCG washes do get progressively more side effects. I was good to go, (just the usual uncomfortable reactions) until my 18th - 24th BCG treatments.
However, I have been cancer free (CIS) for over three years! I would certainly recommend Dr. Lamm's protocol - reducing the dose after the first 6.My Uro did not follow that, and by the 24th my bladder had enough, and could not even hold the BCG for 5 minutes!
I know you will do well and know we are ALL pulling for you!

Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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13 years 2 months ago #36201 by sara.anne
Replied by sara.anne on topic After 10 years it\'s CIS
Yes, Warren. Unfortunately, as your body becomes sensitised it does become worse. In my case, the first were fairly easy, except for the first six to eight hours. As the treatments went on, both fatigue for several days after and bleeding got worse and worse. A couple of sessions of BCG-induced cystitis delayed treatments for a week several times. By the time I was finished ....AND I DID COMPLETE THE SERIES!!....I was at 1/3 dose.

It was very do-able, if not a lot of fun. But MUCh better than the alternative and MUCH better than the chemo I have seen friends with other types of cancer endure.

Keep up the good work!!

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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13 years 2 months ago #36199 by mmc
Replied by mmc on topic After 10 years it\'s CIS
Warren,

Yes, that is usually the case. Initial treatments (USUALLY) have fairly mild reaction and it builds up over time.

Except of course for me! First one had cramping, bleeding, pain, fever. Second one about the same. Third and final: High fever (concern over sepsis) and no more BCG for me. I'm in the minority on this one though.

As you'll see from Jack, Sara Anne, and tons of others here...it is usually not terrible but not something you'd go do if you didn't have to. :)

Hope your BCG treatments go great, it keeps the beast at bay, and that you keep us posted.

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 2 months ago #36195 by wsilberstein
Replied by wsilberstein on topic After 10 years it\'s CIS
Had my first BCG yesterday. I don't seem to be having any reaction so far, although it's maybe a bit hard to tell since my bladder is still a bit irritable from the biopsies. I don't heal too quickly.
So, all you BCG veterans out there: Does the degree of reaction increase as the treatments continue?
-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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13 years 3 months ago #35819 by wsilberstein
Replied by wsilberstein on topic After 10 years it\'s CIS
Thanks all for your well wishes
-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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13 years 3 months ago #35815 by suzi
Replied by suzi on topic After 10 years it\'s CIS
I am so sorry to hear that the BC back after ten years free.
I hope and sure you gonna beat it again with BCG treatment.
Keep us posted
Good luck
Suzi
Be strong and don't give up.
a warrior

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