That's one of the things that makes CIS so scary. It can be a cell thick, be invisible, and spread across the whole bladder. It was scarier to me when it was invisible than when they found the spot.
Good luck with the BCG! It's the best thing there is for CIS and has a high success rate.
As I put on my flow chart of bladder cancer treatment, ANY recurrence of high grade should trigger a strong consideration of RC. I'm not a doctor and I am not saying RC is the way to go for you. Don't get me wrong.
As I already said earlier, just be very, very vigilant. Study all you can on RC and diversion options now so that you are prepared IF the RC becomes the treatment plan. I found it easier to study when it wasn't staring me in the face. That way, when it did, I was ready to act quickly and knew exactly what I wanted done and by whom.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...