Choice of Hospital/Physician

10 years 11 months ago #32688 by bmathews9744
Choice of Hospital/Physician was created by bmathews9744
I am trying to decide if I should go back to MD Anderson where I went for my second opinion or go to John Hopkins. In reading the messages I see where many good things are said regarding Dr. Mark Schoenberg. John Hokins is where my second surgery pathology was read confirming CIS in several locations in the bladder.

If it comes to me having my bladder removed I want to be prepared with the best resources available. Just looking ahead!!!

Thanks for any feed back---

Brenda

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10 years 11 months ago #32691 by Patricia
Replied by Patricia on topic Choice of Hospital/Physician
Brenda, they are both top institutions. A lot depends on what kind of diversion you want if you do have a cystectomy. Some surgeons have a definate opinion on what they want to put in. But they should explain all 3 to you and you should have a say.
Pat

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10 years 11 months ago #32695 by bmathews9744
Replied by bmathews9744 on topic Choice of Hospital/Physician
Pat, I am not sure of the name, however I do know you have a stoma that empties into a bag on the outside. I met a lady that has one and after talking with her and doing some research on my own---I think this is the best way for me to go should I need a RC. I am 65 years old and of course will listen to any recommendations.

Thanks for your help as always

Brenda

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10 years 11 months ago - 10 years 11 months ago #32696 by Alan
Replied by Alan on topic Choice of Hospital/Physician
Brenda,

This link was originally from Mike or Pat so I bookmarked it. It covers pretty well the different diversions. Don't intend to add confusion but, it will give you all the terminology. my.clevelandclinic.org/services/urinary_reconstruction_and_diversion/hic_urinary_reconstruction_and_diversion.aspx

Alan

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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10 years 11 months ago #32697 by bmathews9744
Replied by bmathews9744 on topic Choice of Hospital/Physician
Thanks Alan for the link--very helpful

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10 years 11 months ago #32698 by Joey
Replied by Joey on topic Choice of Hospital/Physician
Brenda I see Dr. Schoenberg at Hopkins and he is great. I still have my bladder and had focal CIS in 04/08. Today was my 17th BCG treatment as so far the cancer has not returned.

Let me know if you need any further information

Joey

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