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6 MOnth Cysto only after one year?

10 years 7 months ago #29981 by Flamenco.
I did 3 monthly for 2 years, 4 monthly for 8 months and now 6 monthly. I know how you feel, I am now just a bit scared that the time lag could be a bit too long. My next cysto is middle of this month, so will post too with my results,
Diane

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10 years 7 months ago - 10 years 7 months ago #29969 by Baer
Thank you so much. Especially with it being 6 months that is more time for something to grow back.As you all know it is scarey.
I will post here when I get the results.

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10 years 7 months ago #29967 by DougG
Prayers are with you, Baer. It is extremely nerve-wracking in the days leading up to the cystos. Hope it is a good check-up.

Anita
Forum Moderator
Caregiver

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10 years 7 months ago #29963 by Baer
When I had my last cysto he said everything looked clean and that he was going to stretch it out a little and that I should schedule the next one for four months. When I called in to schedule they told me that he had noted that it should be six months but that they would check. They then confirmed that, yes, six months.
I asked about the pathology results last year and he said low grade and the stage was no more than 1 sounding like it was stage 0.
As you can tell I am at the top of the cycle now on this emotional roller coaster that we all seem to report. The discomfort of the scope is not that bad, it is the results that make me nervous.

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10 years 7 months ago #29961 by mmc
Ooops! Jack is right and I am wrong. Sorry about that.
Stick with 3 months.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 7 months ago #29960 by Moonerj
I have never read where you go to 6 month cystos after 1 year all clear. I have read after 2 years and 3 years move to 6 month cystos. Then to 1 per year cysto after 5 years all clear.
I had TA low grade and will not be moved to 6 month cystos until all clear for 3 years.
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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