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1st Experience with BCG

10 years 10 months ago #28537 by mmc
Yep...It's one of the upsides of getting an RC. :cheer:

I hope you never need one but for those of us who have, we do enjoy a couple of upsides.

Cystos don't hurt in the least little bit anymore AND no more annual prostate exams! :woohoo: :silly: :P

If the doc starts putting on that latex glove, I just say "I hope that's for you because I have no prostate to check mate!"

Hey! There has to be some upside to these dang things.

It certainly isn't worth getting an RC from a "convenience" factor but it certainly isn't so bad as people imagine though.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 10 months ago #28536 by DavidW49
red rubber 16 french size catheter? Yikes! Sounds like a garden hose!

I was asleep for my 2 TURBTs so I only know the feeling of the catheter removal the next day, not the catheter insertion.

David
T1 high grade dx 9/09
1st BCG 11/10/09

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10 years 10 months ago - 10 years 10 months ago #28535 by mmc
Best of luck David! Rudy's suggestion about the deep breath is also a very good one. I forgot about that. You want to kind do like you are going to pee when the scope is getting to that spot. It opens it up a bit and makes a big difference.

I've had an RC and they removed the prostate so I sometimes catheterize myself with a red rubber 16 french size catheter. I think that's actually bigger than the cystoscope and it doesn't hurt a bit. I couldn't have even imagined that before! It was one of the things I was really worried about when faced with the surgery :)

I sure didn't like it one bit before the surgery though! :blink:

However, the numbing gel DOES make a difference but be sure to have them wait 10 minutes after administering it so it can work its way down in there some.

That changes it from "HOLY CRAP!!!!" to about a "that's not very fun" on the comfort scale.

Do let us know how it goes.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 10 months ago #28532 by rudyskier
:blink: David, Mike is right it may seem a little odd to say, but it helps if you can just relax your stomach and abdominal area as they it that prostate portal, I found it helps to take in a breath and then slowly let it out as you try to relax.

Good Luck
Rudy

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10 years 10 months ago #28531 by DavidW49
Thanks for the advice Mike - I'll let you know how it goes

David
T1 high grade dx 9/09
1st BCG 11/10/09

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10 years 10 months ago #28529 by mmc
David,

Make sure to ask them about the lidacaine gel. They put that in and it numbs things up. You want to wait about 10 minutes or so after they put the numbing gel in before they do the BCG instillation.

While it certainly isn't "fun", it is usually not so bad either. It's just the prosatic sphincter area that is tight and once they pass that is no problem at all (usually).

Good luck with your BCG!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

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