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1st Experience with BCG

10 years 11 months ago #28012 by sandie
I had my 33rd BCG treatment (can anyone top that?) (third of a three week maintenance) two weeks ago and my bladder is just today starting to feel OK. Yes, it is cumulative. My best hint would be lots water but make sure it's not all cold water.....it can give you chills all by itself! Also, I don't look at the screen....it creeps me out, too.

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10 years 11 months ago #28011 by cljjlk
Lauren,

I am also going through my first BCG after my last TURBT found a TAG3 tumor. I just completed week 4 and like you have not found it too difficult. I would have to say that the main side effect for me has been the fatique. This last time I ran a little fever (chills - body aches) , but no bleeding, burning or pain. I have also been having a discharge that starts about 3 hours after and last about 24 hours. Again, no discomfort assosciated with the discharge. So all in all, it has not been too bad compared to some people here. I am told that the BCG treatment is cumlative and I have to agree. Anyhow, hang in there and keep the prayers going. I have a lot of people praying for me and if you like will include you on the list.
Chuck :cheer:

dx - Aug 2005
Five reoccurences (last 12/09 Ta high grade)
BCG Started 10/09 (2 6wk treatment)
BCG Maintenance started 4/10

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10 years 11 months ago #28003 by mmc
Lauren,

Glad to hear it went so well. Hope it continues to be that way for you.

I only watched on the monitor one time. That was when my wife came in to watch the procedure. Every other time I was perfectly content to stare at the ceiling trying to imagine being somewhere else. :)

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 11 months ago #28000 by lhpdogs
With my 3rd recurrence of TaG1 happening in August, I have now started BCG treatments... first one was last Friday, and I was pleasantly surprised that I really had no pain, no bleeding, and very little urgency. I did notice some tissue sloughed off for a couple of days this week... but I hope the next five treatments go as well! )I'm really getting tired of watching the screen during my cystos, and saying "uh-oh" at the same time my doctor does!!:laugh: )

Lauren

TaG1 12/05
3 recurrences
BCG started 9/09

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