× click the New Topic button to post

1st Experience with BCG

10 years 10 months ago #28327 by lhpdogs
Well, I've had 4 BCG treatments so far... and I am just starting to feel a constant bladder 'soreness' and am very tired. The actual pain upon urination only lasts about 36 hours, and I think alot of that is just the process of catheterization. I have a great nurse who is doing the procedures, and we sit and talk about places in Europe she has visited (and I have on my "wish list")...

Is fatigue a common side effect? I do think about how hard my body is working to send white blood cells in an immune-attack on my bladder lining, and can see how that could affect how I feel overall. It doesn't help that my days are 12 hours (commute included), and I can't get more than 7 hours of sleep a night...:side:

TaG1 12/05
3 recurrences
BCG started 9/09

Please Log in or Create an account to join the conversation.

10 years 11 months ago #28074 by mmc
You may want to tell your uro about your plan and see if he/she suggests you take antibiotics with you as a "just in case" measure in case there is any issue.

Since everything has been fine for you so far, no reason to believe it won't continue that way. However, "better safe than sorry" makes some sense as well.

Only saying that because I got a very high fever the night that I had the BCG and antibiotics were required. If you're in a tent somewhere in the boondocks, it would be good to have a thermometer and antibiotics. Having the stuff you need is one way to pretty much guarantee that you won't need it.
You only wind up needing stuff when you don't have it. :D

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

10 years 11 months ago #28072 by lhpdogs
Oh yes.. i had jars of bleach in my bag for my travel stops!!!My sister laughed and figured no one else ever bleached the toilets at a turnpike rest stop but me:laugh:

This week, I have to take my dog to the vet for x-rays after my treatment 2 hours are up, then I'm doing a civil war reenactment for the weekend, camping out in the cold.... but once my tent is up, I can sit around the fire or nap in my tent all I want - I portray a southern refugee widow who is following the army for safe passage to my aunt's home, after the damn Yankees destroyed my home....:side: I don't want to give up my fun just because of cancer. However, for all the rest, I'll be going home and working at my computer at my dining room table afterwards...

TaG1 12/05
3 recurrences
BCG started 9/09

Please Log in or Create an account to join the conversation.

10 years 11 months ago #28067 by mmc
I thought about BCG and then mitomycin the same way. Getting intravesical treatment is WAY better the chemo in the vein!!!

I never needed "chemo" and hope it stays that way since I've gotten mine removed.

It's good that it worked out for you and I hope you used the bleach in the toilet at those places you stopped so nobody else got exposed to the live TB vaccine. :huh:

The BCG has worked well for many, many folks without getting to be a major problem and I hope you remain to be one of them.

It is advisable to take it easy and stay home the day of "the treatment" though, just in case.....

Best,
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

10 years 11 months ago #28064 by lhpdogs
I thought about that, Mike.. but I figured driving was better than flying, cuz I could stop and get out and walk around and find more bathrooms along the turnpike! I could not miss the wedding (it was in the RainForest at the zoo, and was a blast, dining in front of pythons and pirahnas, and having cocktails with orangutans)!

I asked my nurse who does the instillations how ANY woman could catheterize herself, and she said it was not easy, you couldn't be too chubby, and needed a big mirror...:P

So it's possible by the sixth treatment, these won't go so easy, eh? I have very slight pain and "spasms", not enough to really bother me right now. Then again, I don't have an interfering prostate either... I still have not considered myself having "cancer treatments".. I just look at it as a medical procedure, like the many others I've had. I know I should slow down a bit so I'm not surprised if it hits me harder one of these days...

TaG1 12/05
3 recurrences
BCG started 9/09

Please Log in or Create an account to join the conversation.

10 years 11 months ago #28063 by mmc
Slices and Dicese? ACK!!!!

Mine tried that once with me being in the office awake. I almost hurt my nose when I levitated at the speed of light toward the ceiling! He did't try that again.

Now that I have a neobladder, I think I could do a cysto on myself without any numbing stuff. I cath with a 16 French red rubber catheter and have no discomfort at all. Back in the old days (when I had a prostate that seemed to enjoy strangling my urethra) it was a thought beyond reason to think about a catheter and cystos were dreaded.

Even though I got the numbing gel when they did my 6 month cysto after my neobladder surgery, I think I won't even need it next time.

I'm glad there is at least "some good" that comes from not having the prostate anymore. There should be given the down side of not having one. :(

Be careful on that "drove 6 hours" thing after BCG. I stopped at a grocery store once after getting BCG and that was a mistake. Urgency and pain kicked in unexpectedly. I dashed to the bathroom and made it in time but I was not in very good shape after that. I'd suggest being conservative with activities after getting BCG to be on the safe side.
:)

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 66 Guests 

Statistics

Today Total Opened: 0 Today Total Answered: 0 Latest User: DebraDW
Yesterday Total Opened: 0 Yesterday Total Answered: 6
Total Posts: 54154 Total Subjects: 7105 Total Users: 6675