Best Hospital

11 years 11 months ago #26072 by DoninRichmond
Best Hospital was created by DoninRichmond
:unsure: Well I've been here for a while, but my thread got to long :P , so it was locked.

62-yo, Bladder Cancer (5/1/09), tumor removed (5/4/09), and came back as a "T1 high grade". Will have my 3rd BCG treatment this Friday, with 18-more to go.

Now with 40-years in the Nuclear industry, and 10-years w/a volunteer Rescue Squad, I have ALWAYS been trained to "Pray for the Best, and Plan for the Worst". "You do not wait for your house to catch fire, before you build a Fire-Station and purchase a Fire Truck".

Soooooo, a few questions, please:

1. With much research, I still do not understand "High-Grade" cancer (as in T1 high grade)?
2. Living in Central Virginia, what hostipal would you consider for Bladder Removal? (Melodie, through her web-site, has about convinced me to go with the Indiana Pouch) UVA is not my first choice!

Something DEEP inside me, says in time, I'll face the removal of my bladder, so I want to be PREPARED!

Thanks and God Bless!

Bill Jr
Tumor removed 5/4/09
\"T1 high-grade\"
Started \"BCG\" 5/21/09
Have a 2-yr treatment schedule

Please Log in or Create an account to join the conversation.

11 years 11 months ago #26074 by reseda1420
Replied by reseda1420 on topic Best Hospital
Is an Indiana pouch used with a neobladder? If you can do a neobladder, it is the only way to go.

Please Log in or Create an account to join the conversation.

11 years 11 months ago #26075 by Moonerj
Replied by Moonerj on topic Best Hospital
T1 = Tumor invades subepithelial connective tissue
High Grade = Aggressive cancer

Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

Please Log in or Create an account to join the conversation.

11 years 11 months ago #26076 by Moonerj
Replied by Moonerj on topic Best Hospital
Here is a list of top cancer hospitals in USA.
You are not far from Cleveland Clinic, Mem. Sloan
Both highly rated for bladder cancer


www.usnews.com/directories/hospitals/index_html/specialty+IHQCANC/

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

Please Log in or Create an account to join the conversation.

11 years 11 months ago #26079 by Patricia
Replied by Patricia on topic Best Hospital
Yes those are the top cancer hospitals ...now for top cancer hospitals that deal with tons of bladder cancer the ones closest to you are Johns Hopkins in Baltimore..Dr. Mark Schoenberg (Its also the #1 Urological Hospital in the US)

urology.jhu.edu/markschoenberg/index.php

.....Nashville maybe the next closest site at Vanderbilt..Dr. Chang
www.vicc.org/dd/dz/results.php?id=5
Memorial Sloan Kettering in NYC...only top surgeons there, Herr, Bochner, Donat....they're all excellent.....

As for choices...for men..the neobladder seems to work pretty well and the better the surgeon the better the neo. For women..its tricky...success rate not as good as for men.
Depends on how far you want to travel...there are some great ones in Texas, Indiana at the Clarion Hospitals (hence the name Indiana pouch) St. Louis(Barnes-Jewish Hospital ..Dr. Adam Kibel, Iowa..Dr. O'Donnoll, U of Chicago......California..USC/Norris..Dr. Gill, UCSF..Dr. Konety...Cleveland Clinic..Drs. Campbell or Stephenson....and i could go on......??
Pat

Please Log in or Create an account to join the conversation.

11 years 11 months ago #26080 by britt
Replied by britt on topic Best Hospital
Am I thinking wrong? I would guess that it would be easier with a woman as there is less "plumbing" to deal with. Not to ask for any intimate details it just seems that there would be leees to work with/go wrong with the bladder. Or is incontinance the issue when a female had an artificial bladder put in?

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne