As already stated it is a good idea to have a copy of all of your medical records. The biggest gift you can give yourself at this point is to educating yourself about the type and grade of bladder cancer you are dealing with. There is a potential difference in how you would deal with say a Ta or a T1, high grade or CIS diagnosis. Until you know what you are dealing with you cannot fully understand your situation. Here is a link to our pathology page it is under blc information in our main menu you might also wish to read the section on non invasive blc.
Hi Buttermilk Phil....WEll yeah...your pathology report should state what kind of cancer , the grade of the cancer , and the stage of the cancer. Do you have it in hand? If not call the hospital where it was done and ask for medical records and tell them you want your pathology report and just sign for it...its yours. Its important that your uro went deep enough to get a sampling of the muscle for a correct diagnosis. If its low grade than BCG really isn't effective...so its pretty important you be informed. If it is a higher grade but say a T or T1 tumor than BCG is the gold standard. Treatment starts 10 days after your TURB......but its been highly recommended that a repeat TURB is done on high grade...also a CT scan and blood work and possibly a bone scan dependent on the blood work. You might see out a second opinion from a major center that deals with bladder cancer such as USC/Norris...one of the best in CA...or UCSF.....not sure where Loma Linda is?
a good article to read.
At the very least you need to know the grade and stage. They are your records so having a copy in case you need a second opinion is also critical. The BLC cafe is a wonderful source-go back into the start/home page also; http://blcwebcafe.org/content/view/91/101/lang,english/,
Many of us have had BCG which is the "preferred" treatment in a majority of higher stage cancer of the bladder. Go back and peruse older topics. The people here are wonderful. Sorry you have joined the "club" but, there is life and a lot of hope in this group!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
My doctor at Loma Linda did the cystoscopy and resection, found cancers and did a pathological diagnosis. Nowhere on the report does it tell me what stage or grade of cancer I have. Is this normal? Should I get that from them? I will be started BCG treatment in another four days for six weeks.