Recommendation for Neobladder Surgeon

15 years 3 months ago #22983 by Patricia
Replied by Patricia on topic Recommendation for Neobladder Surgeon
Craig ...both the Skinners are listed in the Best Doctors in the U.S. and both have extensive experience with bladder cancer.
At MD Anderson...Drs. Dinney and Grossman are pretty legendary.
Probably the best at nerve sparing bladder surgery is at Johns Hopkins in Baltimore...Dr. Mark Schoenberg.
If you would like their links i can give them to you or you can just go to their sites and type in their names.
There's a lot of good ones all over the country that deal almost exclusively with bladder and prostate cancer......depends on how far away from Idaho you want to go and if you can get follow up care in your area.
Pat

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15 years 3 months ago #22979 by cbled
Replied by cbled on topic Recommendation for Neobladder Surgeon
Patricia, thank you for the information. I was glad to hear about the Dr. in Portland. I will check him out. I had heard of a Dr. Stein at Norris, but he passed away recently. He was by all accounts a gifted surgeon and I don't know who at Norris is now their most talented surgeon. I have also heard of the Skinners and Donald Skinner is a legend in urology, but I don't know about their talents as neobladder surgeons. Do you have any information about who is the best, most experienced neobladder surgeon at MD Anderson? --Craig

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15 years 3 months ago #22978 by cbled
Replied by cbled on topic Recommendation for Neobladder Surgeon
Nix, I have had three separate six week courses of BCG. I have also tried mytomican-C (sp?) and thiotepa (sp?). If I now have CIS, to me this would represent a significant progression to a more aggressive form of bladder cancer and warrant more aggressive action on my part. I want to act quickly enough to protect my upper tract. My Uro says I am at a fork in the road regarding treatment. Either continue to play with it chemically with another round of BCG or have the bladder removed. I'm leaning toward removing the bladder. --Craig

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15 years 3 months ago #22976 by Patricia
Replied by Patricia on topic Recommendation for Neobladder Surgeon
Craig...does your insurance allow you to travel out of state? There is an excellent surgeon in Portland, Oregon Dr. Daneshmand
www.ohsu.edu/health/meet-our-staff/doctors/doctor.cfm?id=11019
And another resource in California at USC/Norris who do hundreds of radical cystectomys a year...either of the Drs. Skillers...Eila or Donald
www.usc.edu/schools/medicine/util/directories/faculty/profile.php?PersonIs_ID=1090
www.usc.edu/schools/medicine/util/directories/faculty/profile.php?PersonIs_ID=1088
Pat

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15 years 3 months ago #22974 by Nix
Replied by Nix on topic Recommendation for Neobladder Surgeon
Hi Craig
I certainly don't know of a neo-bladder surgeon in your part of the country, we are almost opposite ends of the US. It sounds as if you have made your choice, and maybe someone on the forum will know a good connection.
Have you tried BCG? BCG is effective with CIS. It is the treatment of choice. Just something else to consider. Best of luck with whatever you decide:)

Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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15 years 3 months ago #22965 by cbled
Hello, I'm new to this forum even though I've had TaG1 bladder cancer since 1996. Twelve years and many TURBS latter, I'm told I've developed CIS. I'm getting a second opinion, but if CIS is confirmed, I plan to have the bladder removed. I live in Boise, Idaho and need help locating a qualified, highly skilled neobladder surgeon. Can anyone help. Thanks. --Craig

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