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Hi - just diagnosed with High Grade Non Invasive

11 years 11 months ago #22593 by cljjlk
Hi Tony,

To say the least, you have come to the right place for support and answers to your questions. I was diagnosed in 2005 and had several reoccurances of polyps. Last April I had mitomycin C as my treatment. If I have another reoccurance we will be trying the BCG. In any case, we all here understand the apprehension and the fear of the unknown. You are smart to get the second opinion. However, at some point, in my opinion we need to trust our Urologist. Non Invasive BC has an excellent survival rate. If you will follow your Uro's instruction and have the regular cystos, most likely you will find the desease more of a inconvenience than a threat. Best of luck and our prayers go with you.


dx - Aug 2005
Five reoccurences (last 12/09 Ta high grade)
BCG Started 10/09 (2 6wk treatment)
BCG Maintenance started 4/10

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11 years 11 months ago #22592 by Lady Jane
Welcome Tony. Like the others have said this is the place for lots of experinces and information. I joined just recently and have learned so much from the bladder gang.
I hope you stop by to vent your feelings and frustrations and to be amongst friends many whom are in your situation.
Hugs for support as this all sinks in.

Ta Grade 1
15 BCG
dx Jan 07

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11 years 11 months ago #22591 by drosenberg
Tony, we all understand your concerns, perhaps the greatest of which is what the future holds for you. Unfortunately, none of us can answer your questions with any certainty. You have, however, come to the right place. There are many participants here who are generous in sharing their experiences, and, needless to say, we all have great empathy with your situation. In general, you'll find that bladder cancer survival rate is good, and the BCG therapy you've been prescribed is known to not only enhance your chances of survival, but also the odds that you'll keep your bladder. I'm sure others will chime in here.


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11 years 11 months ago - 11 years 11 months ago #22590 by Patricia
Many here Tony in the non-invasive section with high grade tumors who have been successfully treated with BCG or Mitomycin...take a look in that section. Its good that you are going for a second opinion and probably a second TURB as sometimes there is residual left and you want a first rate surgeon and pathologist who sees a lot of bladder cancer.
This from Dr. Herr at MSK...a top surgeon in the field
"Herr HW.
Department of Urology, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, NY 10021, USA. This email address is being protected from spambots. You need JavaScript enabled to view it.

PURPOSE: This study was an evaluation of whether restaging transurethral resection (TUR) of superficial bladder cancer improves the early response to bacillus Calmette-Guerin (BCG) therapy. MATERIALS AND METHODS: A total of 347 patients with high risk superficial bladder cancer (high grade Ta and T1 tumors associated with carcinoma in situ) underwent a single transurethral resection (TUR, 132 patients) or restaging TUR (215 patients) before receiving 6 weekly intravesical BCG treatments. The patients were evaluated for response (presence or absence of tumor) at first followup cystoscopy, at 6 and 12 months after treatment, and evaluated for disease stage progression within 3 years of followup. RESULTS: Of the 132 patients who underwent a single TUR before BCG therapy, 75 (57%) had residual or recurrent tumor at the first cystoscopy and 45 (34%) later had progression, compared with 62 of 215 patients (29%) who had residual or recurrent tumors and 16 (7%) who had progression after undergoing restaging TUR (p = 0.001). CONCLUSIONS: Restaging TUR of high risk superficial bladder cancer improves the initial response rate to BCG therapy, reduces the frequency of subsequent tumor recurrence and appears to delay early tumor progression.

PMID: 16280743 [PubMed - indexed for MEDLINE]

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11 years 11 months ago #22585 by Tony
I have hade TURB, will have BCG next month, 41 year old male. - Anyone have success with this ? I am seeking a second opinon from Roswell Park in Buffalo where I live, I expect the same course of treatment. - Will I likely lose my bladder ? Will I likely die from this ? What can I expect down the road ?

Any one had a partial cystomy ? Neo Baldder ?

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