having a bad day

12 years 6 months ago #22383 by cas1966
having a bad day was created by cas1966

i just needed to write because i am having a bad day. my dad had his three month check up last week (his tumor was t1g2-3). it was one year on 11/2 that his original tumor was removed. last week the dr saw a small "white fluffy thing" that he described as not yet a tumor but that it was trying to develop/turn into something. i understand that recurrence can happen and that it is good to have caught it early so it can be taken care of but my mind wonders and i tend to think about all the "what ifs" and worst case things. i guess i just need a little reassurance. it has been caught early, that is good isn't it? i probably don't make sense right now but just needed someone to talk to. thanks.


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12 years 6 months ago #22384 by Nix
Replied by Nix on topic having a bad day
We all have bad days, and you came to the right place. That is why we have 3 month check-ups the first two years, so our doctors can catch the sneaky BC early. Is he on BCG? If so, they will probably repeat that. Don't push the "panic button" until you have all the facts and results. It could be a number of things that can range from an infection to irritated spots from BCG.
Hang in there, I pulling for you:)


Nancy S
dx Ta 11/06
dx Ta CIS 10/07

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12 years 6 months ago #22391 by slabman
Replied by slabman on topic having a bad day
Claudia, I'm probably closer to your Dad's age, so can more directly relate to his seemingly more even-naturedness about all this. See, you are sensing you could well lose your Dad and you are not prepared to let that happen. That's understandable...and I can tell you it's happening in MY family as well.

You have to remember where your Dad and I are in our life's progression. We have lived through a lot and if this event is to be fatal, well, that's the way it'll have to be. But we'll go down fighting the best we can and the younger ones will have to go on without us. So if you can't motivate him to do something you think he should do regarding this matter, try to support him in his decision...he likely knows the score. However, in all probability, this will be "nipped in the bud" and you'll have nothing further to worry about. Not a fun time in your life is it? Isn't for me, either....but hang in there.

T1 G3
Age 66
DX April 2008
TURB April 2008
Last BCG (#15) April 2009

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12 years 6 months ago #22405 by pemquid
Replied by pemquid on topic having a bad day
I can relate to both sides--child and parent. My dad had bladder cancer when he was in his 70s, back when the treatment was just removal of the tumor (no BCG or mitomycin yet). He had one recurrence, and of course we were all worried to pieces. As it turned out, that was all he had, and he died in his 80s (from metastisized lung cancer, unrelated to the blc, but related to smoking); he had been clear for some time of bladder cancer, and was on just annual blc check-ups at the time of his death. I had a first tumor in May 2006, lowgrade & non-invasive, removed via TURBT. At the two year mark this past June, the urologist found 2 even tinier tumors (pinhead size), which he removed. Now I'm on BCG, and have had one all-clear check-up since the initial 6 weeks of BCG.

In terms of what the urologist says he sees in your Dad, as others have said there are other possibilities besides a new tumor, including changes due to the BCG itself. I forgot if you've mentioned it, but how long was it from the time of the last BCG treatment to the current cystoscopy? Some people's bladders react more strongly, and the lining can stay abnormal-looking for awhile. And, as others have said, even if it's the start of a new tumor or other abnormal cells, it sounds as though the urologist is right on top of it. I'm afraid with bladder cancer, it's generally not a question of "if" you are going to get recurrences but "when", how many, and what type. I'm resigned, and so long as any recurrences I have are the same type and grade, there are not a lot of tumors, and the interval between recurrences is not too short, I'll be happy (and if something changes, I'll deal with that when the time comes).

Best of luck to your Dad.


Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.

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12 years 6 months ago #22410 by suzi
Replied by suzi on topic having a bad day
I love that you are worry about your dad. it's always touch me how our children deal with our problem ,
dear , don't worry ,I had tow recurrence the second one was detected very early and the doc burned it in his clinic no need to hospital ,
I am now almost 18 month free .
be optimistic , hope the best to your dad

Be strong and don't give up.
a warrior

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