BCG Failure

15 years 4 months ago #22241 by suzi
Replied by suzi on topic BCG Failure
Lady Jane,
Good luck for your surgery ,keep us informed .
I had 7 BCG+interferon during January ,march 2007
small tumor recurrence on June 2007
BCG alone for 6 week between July and august 20
so far still clear, my next scopy on December 8th,
as I see here it looks no real data about what it works and what not?
for me BCG+ interfone didn't work,
BCG alone it look worked at least till now.
I hope they will find soon what will work for all cases and the cure from the
all kind of cancer.

Be strong and don't give up.
a warrior

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15 years 4 months ago #22227 by pemquid
Replied by pemquid on topic BCG Failure
LadyJane and Moon--

Welcome to the forums. I've found information here to be very helpful, and the people are extremely kind, knowledgeable, and supportive. I'm a "neighbor, so to speak (Maine). It sounds to me as though there may be a different "standard" BCG protocol in Canada than in the U.S. I'm on the "Lamm" protocol, with an initial 6 weeks of BCG, then 3 months later 3 weeks of maintenance, 3 months after that another 3 weeks of maintenance, then 3 weeks maintenance every 6 months, out to 3 years from the start. I believe it's a total of 30 BCG instillations.
blcwebcafe.org/drlammsprotocol.asp
So far I've just had the first 6 weeks with 3 weeks scheduled for January; I was all clear on my scope last week, after completing the 6 weeks in mid-September. However, my urologist said if I had recurrences during this 3-year period while on BCG, we should consider other options. BCG+interferon may be an option if recurrences are continuing while on the regular BCG schedule. Mitomycin is another option. I'd definitely check out other treatment options in face of such frequent recurrences.

Ann

Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.

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15 years 4 months ago #22224 by Lady Jane
Replied by Lady Jane on topic BCG Failure
That is my next protocol as well. Surgery tomorrow, 4 weeks of healing then 6 BCG treatments with monthly instillations.

Ta Grade 1
6 TURBS
15 BCG
dx Jan 07

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15 years 4 months ago #22212 by Nix
Replied by Nix on topic BCG Failure
Moonerj
I have never heard of monthly treatments. How many months will you have the BCG?
Nix

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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15 years 4 months ago #22206 by Rosemary
Replied by Rosemary on topic BCG Failure
Moon,

You've been taking monthly treatments????

How interesting....

Ro

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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15 years 4 months ago #22199 by Lady Jane
Replied by Lady Jane on topic BCG Failure
Its nice to hear a positive outcome moon.:)

Ta Grade 1
6 TURBS
15 BCG
dx Jan 07

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