Three Month Cysto - Never Clean

Thank you guys for the quick replies. We indeed live our lives in three month increments. Never having received good news at three months as it approaches it is always high stress and anxiety.
Yesterday was also the first time the doctor did a biopsy in the Cysto treatment room and it didn't go very smoothly. The second tumor they took a peice of starting bleeding more than expected and they had to go get the cauterizing machine and zap it to get it to stop. I am thinking he did an in office biopsy this time to make the move towards discussing RC if it's high grade? At all other 3 month reoccurences a TURB was shceduled and that was that.
We did seek second opinions in the past and probably will do so at this point also.
One thing I always worry about is the cancer going outside the bladder becasue of all the scar tissue. I remember at the first Cysto being amazed at the pretty pink image on the screen. Now it is just a mess in there. My fear is that the cancer will grow out of the bladder becasue the scar tissue will prevent it from growing into the bladder that it may work backwards and grow out of the bladder. Is this a genuine concern? Does that ever happen?
Some days this stupid bladder cancer concerns me every waking moment.

Thank you all again very much.

The only advice I can give is get a second opinion so that your choices are very clear to you before making a decision. If RC is the answer know that it is a tough road but not horrible. Sure the surgery is tough and it takes a while to recover, but then life gets back to normal. Sometimes the Mitomycin and BCG stories sound worse than anything I have had to deal with. I hope that everything goes well for you guys and will keep you in my thoughts.

Webs

Wife, All I can offer is a hug for support as I am not versed in this cancer enough to be of help.
Thinking of you and your husband.

I am going to try to sum up my husbands bladder cancer journey to this point as briefly as possible.
He was diagnosed in October 2006. Due to other medical problems and serious infections he was dealing with at the time bladder cancer was an accidental finding.
His initial TURBT pathology was T1 G3 and his tumor was 10CM. He did have a re-TURB to remove any residual tumor. At three months the Cysto revealed more tumors. Once again TURBT pathology revealed High Grade. During the early bladder cancer treatemtns he was plagued with MRSA infections (MRSA appeared before BC diagnosis) and DVT (deep vein throbosis in the leg that he had surgery on due to the MRSA) and also PE (pulmonry embolis) also a complication form his MRSA surgery. I only point this out because these conditions did slow down some of the bladder cancer treatments and surgeries. He had been on Coumadin and Lovenox (blood thinners) and he ended up having to have a filter inserted so he could come off blood thinners to have TURBT surgery and office Cysto's.
First treatment was 6 weeks of BCG. More tumors at 3 months. Doctor went back in for TURBT and there were 12 areas that were early stage tumors that were visible with the scope. I have a picture of this and it looks almost like warts growing all inside his bladder.
He was given Mitomycin C directly after surgery and had a very bad reaction. He was miserable for six weeks and never slept for more then two hours at time due to the pain, pressure and feeling the need to void. The doctor said no mytomycin for him ever again becasue of the side effects.
Three month cysto shows new tumors. Another TURBT and then treatment with 6 weks of BCG with interferon.
This brings us to yesterday. Three month cysto and there are two tumors. The doctor for the first time said "Well it looks like we have exhausted all of our choices". I knew that was coming. The doctor did take two biopsies- one of each tumor - and he said if they are low grade (husband has never had a low grade path) then he would consider a maintainence BCG but if they are high grade RC must be considered.
Opinions?