Just back from cysto...

15 years 5 months ago #21629 by DIB
Replied by DIB on topic Just back from cysto...
Ross and others:

Your words and experiences have helped. Especially about your having a positive FISH test. I get my FISH results tomorrow and researched and found that one study found 21% false positives from FISH!

I had my post-cysto biopsy/TURBT on Friday and am now with that wonderful device, the catheter. No biggie. But waiting for the path results that will take at least another week to get back...

Male Dx T1G3 5/08 @ Age 59. TURBT 5/08; TURBT+40 mg MMC 6/08; BCG (6) 7/08-8/08; Cysto & TURBT 9/08; BCG Maint(3) 10/08, 3/09; 7/09; 11/09; 5/10; & 1/11. Clean cystos 2/09, 9/09, 3/10, & 10/10.

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15 years 5 months ago #21541 by michstate89
Replied by michstate89 on topic Just back from cysto...
David,

I went through a similar situation after BCG. My first cysto after 6 weeks of BCG was done about 2 weeks after finishing the last treatment. The tumor sites were red and had some calcification. I also had a positive FISH test at the time, so went through the biopsies and they were negative. I even had the ureters and prostate done (several procedures) because my uro was concerned about the positive FISH. I am fortunate to have family that lives in Phoenix and my doctor wanted me to be seen for a second opinion concerning the BCG protocol - I went to see Dr. Lamm and the red areas and positive FISH did not seem to surprise him (he did have the benefit of knowing my biopsy results). However, I am glad that my doctor was so thorough even though I went through a lot.

So far I have been tumor free for almost 2 years and at my last cysto my doctor said my bladder looked like I never had cancer.

I know this does little to relieve your anxiety, but there seem to be many here with the same experience following BCG. So think positively and keep your spirits up. You have been through the TURBs and you know what to expect from the procedure - just another step in the process of remaining cancer free. I wish you the best and hope your results turn out the same as mine.

Ross

Ross M
TaG1 March 06
Recurrence Jan 07
BCG Maintenance after 6 week treatment

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15 years 5 months ago #21525 by DIB
Replied by DIB on topic Just back from cysto...
Rosemary:

I had initial TUR in mid may 2008, reTUR plus MMC in mid-June 2008 and started BCG in early July 2008.

I seem to recall that you have been through the BCG and TUR cycle several times.

David

Male Dx T1G3 5/08 @ Age 59. TURBT 5/08; TURBT+40 mg MMC 6/08; BCG (6) 7/08-8/08; Cysto & TURBT 9/08; BCG Maint(3) 10/08, 3/09; 7/09; 11/09; 5/10; & 1/11. Clean cystos 2/09, 9/09, 3/10, & 10/10.

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15 years 6 months ago #21508 by Rosemary
Replied by Rosemary on topic Just back from cysto...
Dave,

I'm curious. How soon after TURB did you begin BCG?

Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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15 years 6 months ago #21507 by mmc
Replied by mmc on topic Just back from cysto...
Best of luck to you Dave. My RC is scheduled for 10/8.
:(

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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15 years 6 months ago #21491 by slabman
Replied by slabman on topic Just back from cysto...
Bummer, Dave. I guess you're about 4-6 weeks behind me, so I know how you feel-I think. That rc is just a little too much to think about at this time. We'll be watching and praying for you. Keep us posted.

Bob
T1 G3
Age 66
DX April 2008
TURB April 2008
Last BCG (#15) April 2009

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