I was supposed to start my first BCG treatment this last week but since there was still blood in my urine from the TUR on Oct 31. My urologist says to still have some moderate bleeding is normal and he doesn't want to start the BCG while I still have bleeding.
He said it is not good to get that stuff in your blood stream so he'd rather wait another week to start.
Seemed to make sense to me that if one is bleeding that introducing bcg would get it into one's bloodstream.
By the way, I'm brand new here. Been reading a lot of what people have been posting over the past couple of days.
In my case, just had the TUR done and it turns out I have CIS (as far as we know, ONLY CIS as no other tunor was found during the cystoscopy). Removed all of it during the TUR. It was about 1 cm by 3cm (I think). After reading here, I'm going to ask for a copy of the procedure notes. I did get a copy of the pathology report but all it said was CIS.
My urologist ordered a CAT scan and the results aren't conclusive. He said there MIGHT be something in the bladder wall (not visible when they looked during the cysto). But, it COULD be tissue from the surgery. He had ordered a needle biopsy by radiology but they said no because it would be too risky to needle biopsy it. SO.....instead I get to wait four more weeks to find out if there is any change in the CAT scan.
From statistics I've seen, it doesn't seem very likely that I only have CIS in the one place that they removed without having it somewhere else. Anybody else have ONLY CIS? Did the BCG do the trick? The plan is to do the 6 week cycle, wait a bit and then do monthly maintenance with a quarterly Cystoscopy to look around.
Based on what I described, does this set off any alarm bells? Is there anything else I should be doing/asking at this time.
I'm sure I'm not telling anybody anything new, but at this point in the process, the waiting to find out something is a real pain. From what I gather though...waiting to find out is going to be the deal for the rest of my life.
Just diagnosed with CIS on 10/31/06 (TUR on that date).
Smoked forever, quit 11/5/06.
Male, 47 yrs.
Any advice or ideas would be appreciated.
Thanks!
Mike
