Don't panic...remember l0%.....if no other tumors found of high grade which happens in the small minority...(it happened to me but was very visible at TURB)......Some CIS hides.......if yours isn't hiding you're doing the right treatment with BCG and frequent poke and peeks.
I find that I always learn new things when I re-visit things I have already read. I was perusing the section on CIS under the BLC information of this web site, and was struck by the following excerpts..
"CIS-carcinoma in situ, is relatively rare, comprising approximately 10% of cases and is also considered a superficial tumor (does not penetrate the bladder lining), and is usually associated with concomitant high grade, invasive TCC in adjacent or distant urothelium (secondary CIS).
Occasionally (1% of cases or less), CIS is found without associated invasive TCC (primary CIS"
QUESTION: what does the part about "usually associated with concomitant high grade invasive TCC..." mean? I was under the impression that CIS was "controllable" with BCG, or, at worst, bladder removal. Is it USUAL that it has already spread? Guess I am in a bit of a panic, confused.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society