Hi Tim,
Please don't apologize, no need for that. I'm sorry to have made you feel as if you made a mistake posting here, all input is very much appreciated. Thank you for sharing your experiences on behalf of all who come along, and surely benefit from it.
It's only that I've spoken with a few people that are afraid of the larger, mixed group and don't stay on. I felt maybe a special place for low risks to talk about the frustrations of that dx would help. For example, people with a low grade Ta, low risk tumors are often treated as if they don't have cancer by family members. It's a kind of limbo, do they? Don't they? Of course they do. Even that small risk of progression means you are never totally free of worry.
There's a whole other set of concerns for people with life-long, recurrent, low risk tumors. However you cut it, quality of life takes a beating with time, bladders become damaged from years of cystos and TURs, side effects kick in. Yet compared with people dealing with invasive bladder cancer (all things being relative in cancerland) they fear to sound trivial, so are often the quietest members of the group.
That's the rationale of a separate area. But of course all input is welcome.
Take care,
Wendy