I have quite suddenly come down with severe joint pain in my left hip, right shoulder and right hand.
It is so severe that I had to stay home a day from work last week as I could not even walk to the bathroom while I was at work.
I've never had joint pain like this before, and now I am reading that BCG's can cause joint pain.
I'm about 3 weeks out from the last BCG and this began on Halloween night, exactly two weeks from the day of last BCG. Has anyone ever experienced this symptom on delay like this, or, is this just something else that I need to add to my list of worries? :-/
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006
Sure it could be from something else than BCG, like the beginning of arthritis...but yes, I hate to say it but it could be from BCG. I know a few women who were left with lasting symptoms. If it's from BCG it could go away, if it's something else it probably won't.
Have you spoken with your doctor about it?
Some time ago I had the same side effects from treatments for breast cancer (Tamoxifen and Zoladex), pain in the hips and back, I couldn't walk very well for about 6 months but did not get a lot of sympathy from the doctors. Pain killers didn't help. We got a new bed that rises at the head and feet (witha buttom) and it helped a whole lot. The symptoms went away. Even though xrays and bone scans showed the beginning of osteoporosis (at 43?).
I had BCG with interferon and I did get joint pain after the 4th treatment, even a wound I had 36 years ago has flared up and Is now the worst and last one hanging on. I did not finsh the last 2 treatments the URO said It should work. By the way I got sick from treatments before the joint pain started. I did have 6 BCG treatments 6 months ago and had no side effects but also the treatment did not work. Doc says a lot of people say if you have side effects it is more chance it is working. I hope this is the case, I have my TURB on the 27th of Nov. Don
I had a chest XRay before my last TURBT + TURP earlier this week thinking the crippling pain I had in my rib cage and right shoulder MIGHT be mets. but that was OK.
I am now down for a CT Scan on this coming Thursday to see if that shows a probable cause.
Personally I believe that I will come up clear for mets but that scoliosis will prove to be the problem.
Scoliosis has been caused by the herniation of my KC scar and the fact that I have no stomach muscles - the spine is now curving sideways to compensate/carry the large bulge on the left!
Many of the aches and quite serious pains have a mechanical cause!
A small but significant thought is that prior to my nephrectomy I could slide into bed and get up in the morning hardly creasing the bed since the op my side of the bed is a mangle of sheet! I am incredibly restless - so much so that my infinitely better half often gets up and sleeps in the other bedroom! She also tells me that I now talk in my sleep (probably a good job she sleeps in the other room when I'm talking in my sleep :-[ )
Just a thought but have you tried a TENS Machine for the pain - they do work well sometimes.