Aw Fred, I'm sorry you feel like toast. You are not toast! Bladder cancer has many treatment options that actually work.
This ongoing infection is definitely a problem regarding timely treatment. I'm not sure what is the best thing to do. Please find out!
You are your own best advocate and it's wise to be aware of the pitfalls after a cancer diagnosis. Find out all you can about every detail of your diagnosis thus far and be pro-active on your own behalf. It can mean all the difference.
Hang in there and please keep us posted about your progress. Keep asking questions.
Well....after re-reading your first post I am less than thrilled that the doctor has let you walk around with multifocal cancer and delaying treatment. Mike's reply to you that 3 months go by between ct scans, well that is follow up for those who have just undergone bladder removal.
It is also common to wait 3 months between cystos for the newly dxed/ superficial blc.
But T1 and CIS are dangerous and shouldn't be left to simmer.
Bladder cancer is notoriously understaged and second opinion on path reports can be seriously enlightening. I want you to be very sure about the exact stage of your cancer. BCG doesn't help T2 and up tumors.
This review mentions Lymphvascular invasion and hydronephrosis of the kidney as further risk factors:
"In a group of 422 patients from the University of Michigan, understaging was demonstrated in 43% of patients with superficial and non–muscle invasive cancers and 59% to 60% of patients with muscle invasive disease. Within this cohort, 32% had evidence of lymphovascular invasion (LVI). Those patients with LVI had a much higher rate of understaging (87%) than those without LVI (46%). In multivariable analysis, LVI was the only independent predictor of understaging; patients with LVI had nearly 8 times the risk of understaging than those without LVI (P < .001)." www.medscape.com/viewarticle/507266
"A study presented at the AUA annual meeting by researchers from Columbia University in New York asked the provocative question, Are physicians overusing intravesical therapy in patients with T1 bladder cancer? "
Thanks Wendy. Didn't worry me, just gave me more questions to ask tommorrow.
I feel good about the Doctor. I left the one who originally did my surgery after I kept calling and complaining abou the pain, clots and bleeding. The answer was always, go to the emergency room, which I did four times with no relief. The one I have now was recommended by an Oncologist I consulted for a second opinion.
The Labor day trip to the ER was to a different hospital, different Dr. They did several days of continuous bladder irrigation and the bleeding stopped. I went home and haven't had that problem since. Was told to take it easy physically.
I think the bleeding was caused by bad advice. After the TUR I was told I could resume normal activities after four days. Also, that I could resume my aspirin therapy which I do for another condition.
I played golf, walked 18 holes, a few hours later was bleeding profusely and on my way to the new ER. >
Originally I was told there was more than one kind of cancer in several locations. I think I better get a copy of the Path report myself.