Follow up cystoscopy after resection - unknown object!

16 years 16 hours ago #14877 by gina
patricia....how is it your second biopsy was only 9 days after your first tur?...all this talk about residual tumors is very unsettling!...i got a copy of my pathology report today in the mail...it says,"non-invasive high grade papillary transitional cell carcinoma,with extensive adjacent carcinoma in situ...plz help me...thanks gina

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16 years 18 hours ago #14872 by Patricia
hmmmmm... a bladder specialist that see's an unknown object.....guess he has some more studying to do.......anyway LTS i would definately go for the second TURB as you do need to have this taken care of......and it could be that all of the first tumor was not removed..that happens quite frequently.....and that a newer area has popped up. Believe me you want this taken care of and biopsied...and the sooner the better. I'd try to get that date moved up from late April if possible.
My second biopsy was 9 days after the first and there is no question in my mind that the second opinion and second quite respected surgeon saved my life as residual tumor was left behind and he got it all.
Good luck to you and don't be afraid of a second biopsy.
Pat

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16 years 23 hours ago #14863 by longtallsally
Replied by longtallsally on topic Follow up cystoscopy after resection - unknown object!

Hi Gina,

Just a quick note to wish you the very best with the BCG treatments!

Helen

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16 years 23 hours ago #14862 by longtallsally
Replied by longtallsally on topic Follow up cystoscopy after resection - unknown object!
Hi,

Thanks so much to you all for your replies to my post. I've since made some calls and discovered that the man who examined me wasn't a consultant - he was a doctor who specialised in bladders. I now have an appointment with my own uro next Thursday (hurrah!) and I have great faith in him, so I will ask him what he thinks and if I definitely need a day admission. If so, I'll go ahead with it but it's likely (so his secretary tells me) that it will be the end of April before I go in - arggh!! Apparently the day admission is so that they can knock me out and use a rigid tool to take a biopsy.

There was a small area of suspicious cell stuff that the doctor found during the cystoscopy, as well as the 'unknown' area. He said, "I could have whipped that out today, but I want to have a look at this other area, so we can do that at the same time when you come into hospital." I'm not sure whether it was left over from the initial surgery or whether it's new, but I don't suppose the experts always know that either. It's a relief to know that it can be removed as it shows though, as opposed to having to go through surgery again!

So that's it. The feeling of dread comes and goes, but today the sun is shining and I'm determined to look on the bright side! Also I'm vastly relieved that I'll be seeing my uro next Thursday, as he treats me like an intelligent human being and that's all I'm asking for, really.

Anyway, thanks to all of you again and I'll keep you posted...

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16 years 2 days ago #14827 by gina
LTS...I can't give ya much encouragement!...BUT, I can sure tell ya that I KNOW how you feel!!..My first cysto was done in my doctors office, it was kinda cool as she looked in my bladder she had her assistant flip on a "tv screen" and told me to look..I could see the inside of my bladder very clearly! Technology!!...She was looking for the tumor my gyn found in an ultrasound of my uterus!....moving along saying wow, your bladder looks great!!...all of a sudden she sounded alarmed when saying, "I've never seen anything like it!!"..."DO YOU SEE THAT?"...I mean, it was there right in front of us...all I could think of was, I am with a SPECIALIST and she's never seen it before!!...her voice that day is what continues to scare me now...i am so confused and afraid....two weeks later they did the resection...then came the diagnosis and bcg treatments started yesterday!!...bye the way..i too am a female 51 yrs old!!...plz lets keep in touch! take gentle care, gina

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16 years 2 days ago #14807 by Patricia
Any way with a National health care system that you can get a different consultant? I'd sure go for that second opinion now.............Pat

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