Idea For Everyone on this site......

16 years 5 months ago #8928 by wendy
Replied by wendy on topic Idea For Everyone on this site......
About Survivin, I think it has a lot of promise, as do a whole load of other markers. I stopped following them because of the sheer multitude of articles and never anything transferring to actual practice, and now usually I wait for something to actually become available before I publish info about it.

I'm sure it's all about funding. Lack of funding, I mean.
Wendy

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16 years 5 months ago #8890 by Mike
Replied by Mike on topic Idea For Everyone on this site......
Dunno Pat lol I didn't look at the date so I guess it didn't pan out now I know I got to go and get my eyes check. After this last year the hip replcement and the cancer I have many things I had to put on the back burner. You get an "A" for observation lol. Joe ;)

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16 years 5 months ago #8881 by Patricia
Replied by Patricia on topic Idea For Everyone on this site......
Gee Joe...article written in 2001...why do i have a feeling this is yet another marker that didn't pan out. Wendy will know.....Pat

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16 years 5 months ago #8878 by Mike
Replied by Mike on topic Idea For Everyone on this site......
This is a very interesting article about a cell named survivin and if you read the article you'll see how it got it's name by a group up at Yale. They may have something here as far as a fast and easy test. Joe ;)

www.cancer.org/docroot/NWS/content/NWS_1_1x_New_Bladder_Cancer_Test_is_Highly_Accurate.asp

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16 years 5 months ago #8870 by gamedoll
Replied by gamedoll on topic Idea For Everyone on this site......
My story goes like this. In January 2006 my husband underwent prostrate cancer. Fortunately he is fully recovered. While he was in the hospital I was experienced pelvic pain and saw a nurse prac. Shr checked my urine and said it was diverticulis and gave me cipro. Jim came home and on day I noticed dark urine of a rusty color, but very cloudy. I called my primary and they said he was booked, b ut to come in for a urine test. I said ok and while I was waiting for the results my doctor came into the room right away and said that there was indeed blood and it could be bladder cancer or kidney stones which he seem to think it was because I was having divicular pain. He sent me immediately to the hospital for a CT scan. It came back fine and I continured treatment with flaygyl. On that same ct scan a cyst showed up on my ovary and doctor said not to worry. In September 2006 I went to my gyn and told her I was not comfortable with the ovary since I had cysts as a young woman and an ovary removed. She said for my comfort she would order a sonogram to check the ovary. She called my back that same day and said to get my butt immediately to a urologist because they found a tumor the size of an orange. I went to a urologist in my hometown. He removed the tumor on October 6,2006. Those results showed that I had the most common kind of cancer and that it was pT2pNOpMX. He said that he knew he got it all it was so close to the ureter that he had to put a stent in it. He recommended RC and made an appointment for me with a colluege who trained him and did less invasive surgery with the DiVinci robotic surgery. I went to see him at Washington Urology in Arlington VA.
I was very impressed with him and his practice. He also discover that my first CT in Janaury did not use contrast and was seen by his practiced eye. Any way the rest is history. I choose an Indiana Pouch. He said he would recommend that for his wife, but usually requests the neo-bladder for men. When the path came after the surgery it showed no cancer at all and I did not have chemo of any kind. I felt blessed.
I really belive that God guided me to talk to my GYN.

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16 years 5 months ago #8765 by momof4
Replied by momof4 on topic Idea For Everyone on this site......
Wendy,

I hope so, This is just getting so out of hand. There should be at the least high risk groups. I really haven't looked into the womens stats, as I am dealing with the mens right now with my husband. But as far as the men go, (and I know that not all BC patients have smoked) but the age group of 45-65, white, male, smokers...make up a high percentage of the group. When these men present themselves at the primary Dr.'s office, or Urologist with blood in their urine, it should be one of the FIRST things to rule out. Also Erectile Dysfunction is another symptom, but they have no problem writing prescriptions for Viagra etc...And for blood in the urine first thing...Antibiotics??? With all of those risk factors? Can you imagine if a woman felt a lump in her breast if the Dr. sent her home with antibiotics??? No he sends her for a biopsy, mamogram etc... Men get viagra, and antibiotics first, and then they wait for more symptoms to present themselves before further testing is done. I know that there are great Dr.'s out there that are pro active when it comes to disease, but there seems to be alot out there that don't know anything!!!It just doesn't make sense.

Also, a question...is there a test similar to a PSA for Bladder cancer?

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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