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Bladder cancer metastasis to spine

1 year 11 months ago #55537 by sara.anne
A urologist is not going to handle bone mets but will refer you to an oncologist who specializes in this. This is why you need to be at a center that specializes in complicated cases such as those I mentioned earlier. I don’t know the names of any of the oncologists.

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 11 months ago #55536 by DianaPB
Hi Sara and anyone

You are right, there many good general urologists.

As bone metastasis is difficult issue for general urologists. Do you by chance know specific (names) urologic oncologists dealing with bone metastasis in the nation? Or Who has experience treating Stage 4 Bladder cancer with bone mets?

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1 year 11 months ago #55535 by sara.anne
The "West" covers a lot of ground!! But MD Anderson in Houston, USC in LA, and Stanford in Palo Alto are all excellent. I would expect any urologist who sees a lot of bladder cancer at any of these would be a good choice.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 11 months ago #55533 by DianaPB
Hi Sara,

Do you know any doctors in West who is good for TCC with Bone mets at Pelvis?

I really hope to hear from you soon.

Diana

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1 year 11 months ago #55420 by sara.anne
You might want to consult with the National Cancer Institute.....Dr. Agarwal specializes in difficult bladder cancer
cases

Piyush K. Agarwal, M.D.
Center for Cancer Research
National Cancer Institute
Building 10 - Hatfield CRC, Room 2-5952
Bethesda, MD 20892-1210
Ph: 301-496-6353
This email address is being protected from spambots. You need JavaScript enabled to view it. (link sends e-mail)

Wishing you the best
Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 11 months ago #55419 by shrinkitty0311
Had chemo 2 years ago. Now on immunotherapy which ha helped somewhat. Now spread to spine and left clavicle. Anyone know of meds for metastasis to spine and bone? Prognosis seems ominous.

Thank you,

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