Boston Consult Tomorrow

Thank you. It's helped reading through some of these threads and reading from people that are in the same situation as we are. I'm very thankful for the compassionate, caring oncologist that we currently have and look forward to what tomorrow brings us in Boston. My husband actually records everything the doctors say and we listen to it a couple times when we get home to make sure we understand everything that's been told to us. I'll let you know what happens tomorrow and sincerely appreciate your feedback - I feel less alone. Thank you.

My husband has bladder cancer which has metastasized to his bones. His L2 and T7 were affected and treated with kyphoplasty. He also has a couple fractured ribs. This all began at the end of May when he went to his urologist because he detected blood in his urine. A TURP was performed and another was planned but never came to fruition because before the date for the 2nd TURP came it was already dtermined that the cancer had spread to his bones. We have an oncologist and all she has been able to do up until now is help manage his pain. He was in the hospital for 6 days to accomplish pain management. Before he left he had a post-a-cath installed in preparation for chemo. The oncologist suggests Gemzar and Cisplatin and has gotten us an appointment at Dana Farber in Boston tomorrow. This oncologist that we're going to meet tomorrow conducts clinical trials so we'll have a head full of info and questions at days end tomorrow.

He's home right now and I'm keeping him as comfortable as possible - but he is in a ton of pain. I'm medicating him every 2 to 4 hours and feel as though I'm walking in my sleep myself. That's selfish of me to complain of lack of sleep when he has a much bigger problem at hand. He spikes a fever nearly every day - is that normal? The did labs on him at the hospital and it did not show anything that would cause him to have a fever. It usually happens every day and reads 103 - 103.5

I'm anxious for tomorrow - to talk to someone that can give us hope or at least direction.