Today I had a couple of second opinions and the results from them were to be expected.
I have been very fortunate to have been under the care of a very special lady Oncologist Prof Rottey from Belgium specializing in Urinary and head and neck cancers. This lady advises all local hospitals in Holland also...
When told that nothing more could be done intially I did not want to hear that.
I had to fight and clutch at something to make sure I did my best to stay with my loved ones. I have done enough and now I am going to take some special advise and live for every moment.
Today I recieved a wonderful email from a forum member whom I will keep private but would like to express some of the words in the email.
This has had a profound effect on me today and has give me peace in the thought that I have done enough.
Hello Leigh,
This is xxxxxx from the Bladder Cancer forum.
I see you taking such good care in preparing for your passing. Leigh, my dear - we are all going to pass at some point - no one can escape that. But what we must all do is live, live, live...when there is life...death does not exist.
I understand why you may want to get things in order - ...but now use your time to feel the sun, laugh with your partner, tell everyone that you love what they mean to you....and live! Spring brings so much promise - no one really knows when we are going to pass. So live according to your schedule, not someone else's.
You are the 'heart' on the forum and you have touched mine. Please keep in touch and let me know what you did today to make yourself smile and what your plans are for tomorrow.
xxxxxxxx
Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum