Leigh,
It took me a couple of attempts to read your message all the way through.
You have been an inspiration to me over the past few years and your posts have helped me tremendously.
It's difficult to respond for a couple of reasons for me. First, my throat keeps clenching up and my eyes are watery and my chest is tight. Second, no words can truly convey my feelings about your current situation.
While we've only met here in this forum, it is hard to hear about a friend in trouble and be helpless to do anything about it.
If any of the clinical trials that Cynthia posted look promising, I hope you will give it a try.
It's so humbling when something like this happens and we can't do something to fix it or somehow make it better.
You and your partner are in my thoughts and I wish you the best.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...