Here's Joe, a 4.5 yr survivor.
I'm a crazy Packer fan living in Green Bay, and wear the diaper at night...no big deal.
No really bad experiences, so far.
Nothing to really to complain about.
A diaper is a small price to pay to still be alive...harassing Bears & Patriots Fans makes it worthwhile! LOL
I had three infections, so far...which is kinda funny; as they called it 'pouchitis' and not a bladder infection.
....it took me a while to realize they weren't making kangaroo jokes about my name, Joey and all that; and that they cannot call it a bladder infection, when one has no bladder. Insurance requires it be defined as a pouch.
We laugh alot at the urologist office!
At this point, I self-cath twice a day, AM and before bed, to reduce infection from leftover urine in the neobladder.
I had an illeal neobladder (made from small intestines) in June of 03.
There are never enough questions, only answers not found.
I wish I had come across this website sooner, than 4.5 years later.
I am recommending it to the cancer support groups up here in Cheeseheadland.
Be good and make 'em laugh.
Joe