Just had my 2nd Turbt. Yee owee!
Peeing razor blades once again!
Just knowing it'll pass is soothing enough.
It is amazing what a urethra can withstand.
Very thankful for this forum and all the compassionate replies.
If anyone new reads this, have no fear!
It'll get better!
Don't take a lack of freely offered support or compassion as rejection. The word CANCER has a chilling effect on the people around us. Others do not understand what people with cancer are going through - they just don't know how to respond or what they can say. They don't know if you are going through a rough stretch, or if your demise is imminent.
No one wants to hear the nitty-gritty of a TURBT procedure, or bloody urine or catheters.
They just want you to get well - they want you to be the you were before the focus of your world became bladders, ureters, urethras and catheters.
Try to give those around you more time to become comfortable with the changes. Your world has taken a detour and so has theirs. Once old friends and acquaintances see that you are dealing with your medical issues and remaining involved in life, they will feel more comfortable and safe in being more supportive.
They are not dismissing or ignoring you. They are afraid of saying the wrong thing, and they don't have a clue.
Here in the forum, we understand. We are a group that are on the same road, some of us new here, and others who are further along on the journey.
Hang in there. We all adjust.
What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis
Three weeks after TURB and peeing still stings, but is finally bearable. One more week to wait for 2nd byopsy and stent removal. My urethra is finally healing and not looking forward to having another TURB.
But I'm thankful for the support offered here in this forum. Pretty much the only place I get it. My family doesn't even offer much in the way of support. I've told a total of 7 people and about three offer support.
But, I'm trying to remain positive and it helps very much to come to this forum.
Thanks for the replies. My cystoscopy to remove tumor was two weeks ago. I knew the stent would cause discomfort. It aches mostly. But every time i Pee its like peeing razor blades. So i feel better knowing it will only get better. Stent comes out in two weeks. Thanks very much!
There was definitely some irritation due to the Cystoscope and the removal of the nearly foot long stent.
I experienced increased burning and sensitivity for about a day and a half. I had some tingling/burning the entire time I had the stent, but now that it is gone for a month I no longer have it and feel normal.
I hope the same happens for you....
DX 12/2018 NMIBC T0a both High AND Low grade
TURBT 1/2/19 and 1/29/19
MMC begins 2/22/19