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cytology positive

7 months 2 weeks ago #57249 by Alan
I concur with Sara Anne. Especially with a 92 year old. Call on Friday so you avoid the weekend.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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7 months 2 weeks ago #57246 by sara.anne
If you have any doubts at all about whether you should call the doctor or not call. Also tomorrow is Friday and in my experience problems always arise on the weekend when you can’t reach the doctor so I would suggest you call tomorrow and discuss this with his nurse.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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7 months 2 weeks ago #57243 by sopranosgal
So dad has his turbt 2 days ago. He ended up having to stay overnight because of the bleeding. He will have a catheter in for a week (hopefully not longer). This brings me to my question....The doctor and nurses tell you to call if you have a lot of clots in the urine coming out into the bag. What are "a lot" of clots. He does have some and he has pain when the urine is coming out. We don't know what is normal and what isn't.

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9 months 1 week ago #56772 by Alan
For most of us it was a day or two recuperation at home. I was lucky, my tumor was small and I was at work the next day (done early the previous day). You mentioned AFIB, and that is what may encourage a night stay. Jack suggestion may also work with a spinal. Just keep all your docs in the loop...and most of the time they do communicate with each other.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 months 1 week ago #56771 by sopranosgal
Thank you for your comment. His cardiologist is being included in this as he is on blood thinners, Eliquis to be exact which is for prevention of stroke due to AFIB. We have not heard from either doctor yet as to the course of action to take regarding the surgery. It's good to know that there are alternatives. I am finding out more information from this forum then I did from the urologist. I don't have a lot of faith in doctors (sorry if I offend anyone) due to past experiences.

The urologist made it sound as if its not a big deal..."you go in and out the same day, we remove the tumors." On one hand it made us feel that its very easy and "not a big deal". On the other hand, I feel all surgeries are concerning, add the fact that you are removing probable cancerous tumors and add my dad's age in there and it mulitiplies. My first concern is his coming through the surgery without any complications and his recovery from it. I have read that it takes 4-6 weeks for full recovery. What does that mean for a 92 year old? So many unknowns.

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9 months 1 week ago #56770 by Jack R
Sopranosgal,

Allow me add a comment - I noticed concern about anesthesia and age.

A spinal block can be generally be used instead of global sedation for a TURBT. Obviously the doctor would make an evaluation, but the stress on heart and lung function may be reduced considerably.

It is reasonable to include the primary care provider in the planning of a surgical procedure involving a senior.

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
Until next scope :) :)
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