Hi Everyone! This my first post. YIPPEE :
My father (74) had his RC on Aug 23rd. He did remarkably well and has continued to do well post-op. A few minor complications but nothing that was not expected. He spent 14 days in the hospital, the first 7 in intensive care for the care that he needed during those very critical few days.
Once he went home with several drainage tubes (I believe it was 3) he required the assistance of a home health nurse for the irrigations and the cleaning of the wound, etc. The first week at home is the most critical pertaining to this to prevent any infections or complications. There were specific procedures the doctor wanted the nurse to follow. We all learned how to perform the irrigations in the event of any problem, but in my opinion the skill of a nurse does not come close to what we (my mom and I) could even attempt. If your insurance will allow the home health nurse for a specific amount of visits, get it.......it is well worth it. Make sure you can contact the doctor should there be any questions or needs for consultation by the nurse.
If anyone has had any issues with constipation following the RC, even with stool softeners, fiber, mineral oils, etc. please advise. It has been 6 weeks since my dad had his surgery and he is still having problems in this category. This is his major complaint!
On the incontinence side.....he is doing very well during the day (99%)but during the night he is still getting up every 2 hours by the clock and having some leaks. This was described by the doctor to be normal for several months. He said the neobladder will continue to grow for about 1 year and this will improve the amount of liquid it can hold.
I hope I was able to help you with your question on "what to expect now". I would be happy to answer any questions you might have that I have already experienced. My dad has not been the best patient because his tolerance for pain or issues is very low, however, we are very grateful and appreciative that he is doing so well. Lord knows that he has made my mom nuts and tested her endurance and patience. She deserves the Medal of Honor.........Wife of The Year!!! He should be LUCKY to have someone like her by his side. ;D
Best Regards,
Jackie