hi to all - this is mike's wife, eileen. i know that i can seem harsh, abrasive, blunt, cuts to the chase, tactless, etc. believe me, it's not the first time i've been told that and it certainly won't be the last. i am a very up-front person. my poor husband, after more than 25 years of marriage and two children, is used to me by now. lol!!
anyway, let me first thank everyone who writes or responds to anything on this website. mike and i check it multiple times a day. it's our online support group. it's the only place we can go where everyone is going through the exact same thing. so we are both grateful to have found this forum.
let me set the record straight - i love my husband very very much. i am with him 100%. we researched endlessly to find the best doctor/hospital/treatment plan, etc. we live in the philly area and are going to hopkins in baltimore (2 1/2 hrs. away) for the surgery. i called every doctor i know, and i know quite a few, to have them help us, network, ask around, research, etc., to help us with our decision. one of our good friends is an oncologist, (harvard undergrad, cornell medical school - brilliant guy) and he read the studies for us on neoadjuvant chemotherapy vs. just having the RC. anyway, we now feel comfortable with the care plan. the only remaining thing to be decided is what kind of diversion. i really feel that mike is the perfect candidate for the neobladder. he is 58, looks 48, is very VERY fit, is self taught in so many things (plays guitar, computer whiz, runs a large business very successfully, races his sailboat (J-22), plays golf (only started 8 years ago, is self-taught, and is a 12 handicap), and is ranked #1 in men's doubles in middle states tennis in 55 and over bracket (also self-taught in tennis). i think this is a man who with some patience, persistence, and determination can learn to be continent with a neobladder. yes, he will have a difficult first year, undoubtedly. but i believe that in the long run he will be happier with the neobladder. some of you think i "hammered" him, and beat up on him, and am not supportive. on the contrary, i think i am helping him to see the long term view of the recovery process. i think he is very fortunate that he has these options. obviously, the most important thing to both of us is to save his life. i want my husband here for at least the next 25 years; hopefully more. i will support whatever decision he makes. but he hasn't made the decision yet, and i don't want him to rule out the neobladder because he's afraid of self-catheterization. that's the wrong reason to rule it out in my opinion.
i also know that he really likes to have sex, and will be very sad if he can't, so that is why i asked the question about sex. if he is sad, i will be also, believe me.
anyway, i hope some of you have a better understanding of where i am coming from. michael and i are both very strong people. i just don't know if he believes how strong he actually is.
Eileen