Dar,
I found this website soon after my husbands first turb July 3rd. You see after they went in and found what was a tumor, instead of what I wanted to hear, a polyup, or something less serious, my converstion on the phone with the urologist here locally after the procedure went like this. " EVERTHING WENT WELL, WE REMOVED WHAT WE COULD OF THE TUMOR, I WILL BE SENDING YOU TO THE CLEVELAND CLINIC FOR FURTHER TESTS AND PROCEDURES WHICH WILL BE , CHEMO, RADIATION , BLADDER REMOVAL." To that I said , so it is cancer. He said yes, the path report will give us stage etc..I only heard, chemo and radiation, I completely blocked out removal, I really wanted no part of it..I in tern had to tell my husband as he was in and out of it when he spoke with the Doctor in recovery. So our next trip was to the clinic another turb as they want there own look at things, bone scans,chest scans, kidney scans. We have no involvement except within the bladder into the muscle, it was 2 by 4 centimeters.
We are fortunate for that. But after bladder removal another path report. I pray that the tests are correct, no lymph node involvement. As I have said to Pat and to Wendy both, I wonder what happened to our life. Since April its been so changed. I have let go of the worry as much as I can because it didn't get me anywhere.We are at a vulnerable age, our surgeon said at 66 and in good physical condition other than the heart episode, Gene should do well. We are a couple who spent 2 months in Tucson Arizona in the winter, 3 trips to Vegas a year, and spent the rest of the time here at home with our 2 children and our 5 grandchildren, DOING LOTS OF THINGS. THIS HAS SLAMMED US REALLY HARD.
MY POINT IN TELLING YOU ALL OF THIS IS THAT MAYBE YOU CAN RELATE, OF COURSE WE WANT TO PRESERVE WHAT WE CAN, BUT THE ALTERNATIVE TO US IS NOT ACCEPTABLE. I WAS SO TOUCHED BY THE STORY OF MOM OF 4, HER POOR HUSBAND HAS STAGE 4 AND IS INVASIVE ALL OVER, HE IS 39. I WELCOME THE OPPORTUNITY TO KEEP MY HUSBAND, WITHOUT HIS BLADDER. GOODBYE CANCER!!!!!!
ginger beane