If I were to point to a failure in the medical system it would be in follow-up in training & technique with the ileal conduit bag. I had 2 appointments with my Wound, Ostomy, Continence Nurse (CWCN, BSN, RN). He had me lay down so of course I could not see how he was doing the cleaning etc. Of course I was ill prepared to deal with cleaning and changing technique. Then I was discharged and had to do it myself! Much STRESS, many 4 LETTERED words, loud shouting- about a month before I found this site.
I believe the ileal conduit system is so simple and straightforward that many of our members don’t come here very often. SO I’m urging you old-timers to recall your difficulties back when you first had to learn technique- share with us dumb newbies. I bet I’m not the only one who does not have a loving caregiver to do it. Everything is reversed in the mirror! {groan}
I just had an appointment with my new CWCN Nurse and looked thru the catalogue of seals and bags available. Thousands ! AMAZING!
I fell asleep last night watching film clips and reading threads I had googled. I’m 9 months in and just now getting a handle on what works for me. It seems like it is a very individual thing where what works best for one doesn’t work for others. Trial & error seems to be part of the process. This is not easy for me and other grouchy old men (& women).
Thank you rolsen64 RONI