Dear SC, Experiencing exactly the same thing as your Father. Specifically requested an experienced home care nurse familiar with my set up like your Father. Nurse didn't know as much as my wife and I and I continued to have leaks. Received a referral to a medical supply company specializing in urostomy. The owner, a nurse quickly identified my problem and why the leaks were continuing. We had been using a single bag application & applying it while lying prone. Nurse said it should be applied either standing or sitting and not prone. She applied a 2 piece bag type explaining it would be more secure. She said reason for my leaks was the wrinkled skin in this area not allowing the single piece bag to fasten securely. As my abdomen heals and gets stronger the wrinkles will tighten up. Works great now. I wanted to connect a larger bag to my pouch for sleeping. Check with 2 other medical supply businesses who did not have a clue for the transition piece needed. This nurse had exactly the transition needed. My surgery was on July 26th so I am still learning. With leaks you cannot have any piece of mind. This is my first time on the forum and don't know if I could give you the contact for tis nurse but she would be happy to talk with you. For me, an Angel in disguise. Good Luck for your Father.
I am 78yrs,had aileal conduit surgery 35days ago.&am recovering .Am almost back to normal-no dependency from my family members.
I am facing two discomforts
1) Urobag leak as being discussed in the post.
I have been doing all trial&error method and learnt to see that the 'sagging'of the bag is minimised -by putting the Urobag into a special pouch stitched at the inside of my shirt(serving 2purposes-to house the bag ---to hide my stoma bag ).
During sleep I have contrived a device which keep the nylon connector and the tubing to have the natural gradient so that the urine flows constantly to the night drainbag without bulging the staain bag.
THE PROBLEM YET TO BE ADDRESSED IS:-
My stoma bag gets filled up in 50 to60 mts.I am scared to venture into any travel which takes more than an hour.
I am on a carpool and cannot carry my Night drain bag.I cannot afford to employ a driver who demands skyhigh.
CAN ANYONE IN THIS HELP ME TO ALLAY MY FEAR .
One great tip I received on leakage: One day before changing pouches, put adhesive on the pouch.
I use Torbot, but I know there are others. Put it on heavy and let it sit overnight. I got this from a
person that had both a urostomy and colostomy. I haven't had a leakage problem since. Nobody I know in the stoma community has ever heard of this method. Give it a try and good luck!