There are two patients support groups for Indiana pouch which I am aware of.
Sandy hosts monthly Zoom meetings for patients with Indiana pouch.
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Neobladder and Indiana pouch patients support group in British Columbia, Canada
I believe it is held bi-monthly. Fiona - ostomy nurse is hosting Zoom based
support group.
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Discussion board
Below is the link to discussion board of UOAA (United Ostomy Discussion Board)
www.uoaa.org/forum/search.php?keywords=indiana+pouch&sid=c42b11b819164ae271946bdc8a7d2cbc
A catheter manufacturer site says as follows on incontinency after Indiana pouch surgery.
Incontinence: urine leakage occurs more frequently during the first few months as the pouch is still learning to hold urine. But it can also occur if the ileocecal valve is not totally continent, or if the pouch goes too long without catheterization.