My husband went to Moffitt and we were extremely pleased with their health care.
His Orlando urolgist forwarded his records, and the same day Moffitt phoned and made an appointment for him to see Dr Roger Li, one of the surgeons.
We never felt rushed in any of our appointments, and everything was fully explained.
After 6 weeks of chemo, there was a 6 week break before Dr Li performed a studer neo-bladder.
He also removed 16 pelvic lymph nodes in the 8 hour surgery on 2nd March.
He spent 7 days in hospital, the last 2 was because his electrolytes were very low, and so could not be discharged.
A home help nurse was arranged for him until all his bags had been removed.
He has been committed to self catheterizing as instructed by Dr Li, and has not had any problems.
At first he had to void every 2 hours day and night, but now is up to 4.5 hours.
He is 69 years old, and of course a golfer, he really wanted the neo-bladder over the urostomy bag.
We just returned from seeing his family, and they all agreed that he now looks so well you would never know he had been through chemo and a major operation.
Yes, radical cystectomy would be the logical next step after chemo for stage 3 bladder cancer. It will be interesting to hear the recommendations from Moffitt.
Patients who have had bladder removal live full lives with whichever diversion they choose. While it would be nice to keep your bladder, when it is a choice between your bladder or your life, I know which I would choose!!
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society