Wife DX with T2 Micropapillary Cancer...

1 year 1 month ago #61673 by sara.anne
Replied by sara.anne on topic Wife DX with T2 Micropapillary Cancer...
That was really good news.  Your wife deserves a "Hero" badge...and you deserve one also!

We always hear about bad side effects of drugs.  Unfortunately, there are "good" ones also.  Feeling good is one bad/good side effect of steroids.  And patients don't want to go off them for this reason and then the bad side effects set in.

Keep up the good work..........

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 year 1 month ago #61672 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Every day IS a great day! Thanks.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 1 month ago #61671 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Well we had an interesting event take place during this past three  month period.  About a  month ago my wife had a cough that would not go away.  She then started having shortness of breath and an elevated heart rate.  Her doctor had her go to the ER at MD Anderson.  After a four day stay in the hospital they sent her home with oxygen and steroids.  As of the time of this writing she has completed her steroids and uses the oxygen rarely.  They never did get to the bottom of the illness, they think possibly COPD or asthma.

Now as far as her scans.  They did two of the three scans while she was in the hospital.  The following scan was completed a week later as usual.  All three scans were in fact clean, no changes.

Before her next appointment she will have a bone scan. They are a little concerned about her elevated heart rate as it is regularly  120-130 with little exertion.

She remains on Keytruda and has been on it 28 months since her cancer returned as Stage 4 in November 0f 2020.  She had her RC January of 2020.  

Her main side effect is still soreness/fatigue.  NOTE: She felt great while on steroids.

She still gets around fine and is self sufficient.  In fact she has recently started driving again.  Her first trip was to the grocery this week.  
Her next milestone will be Easter.

Every day is a great day.  Will report back in three months, hopefully nothing worth reporting until then.



Thanks,

James

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1 year 4 months ago #61478 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James, thanks. Very positive and hope for all.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 4 months ago #61477 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Just got news today that the latest scans came in stable again!  No news is good news.

She remains on Keytruda and has been on it 25 months since her cancer returned as Stage 4 in November 0f 2020.  She had her RC January of 2020.  

Her main side effect is still soreness/fatigue.  She does have a bump that feels soft near her elbow that they may do a biopsy on.  

She still gets around fine and is self sufficient.  Next big milestone will be her reunion with cousins in September.  Another holiday season is just around the corner.  

Every day is a great day.  Will report back in three months, hopefully nothing worth reporting until then.



Thanks,

James

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1 year 7 months ago #61425 by sara.anne
Replied by sara.anne on topic Wife DX with T2 Micropapillary Cancer...
Wonderful news...keep it coming!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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