Wife DX with T2 Micropapillary Cancer...

4 months 3 weeks ago #61176 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Hello,

Once gain been so busy forgot to come on here and update.  No news is good news.  As of the last scan three weeks ago, everything is stable-- still!  

She remains on Keytruda.  She has been on it 14 months since her cancer returned as Stage 4
and over two years since her radical cystectomy.  Her main side effect is still fatigue. 

She still gets around fine and is self sufficient.  She is looking forward to a trip in March to New York.  
So we will continue on this road as long as we can.

Sorry for the delay in updating.

Thanks,

James
The following user(s) said Thank You: Alan

Please Log in or Create an account to join the conversation.

7 months 2 weeks ago #61020 by Jack R
Replied by Jack R on topic Wife DX with T2 Micropapillary Cancer...
JamesF

I appreciate the first-hand reports of positive effects of treatment. "Stable" is the brass ring many of us hope to grab. "Self Sufficient" is a bonus.

Best to your wife, and to you.

Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

Please Log in or Create an account to join the conversation.

7 months 2 weeks ago #61019 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
We are thankful the update is stable!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

7 months 2 weeks ago #61018 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Been so busy forgot to come on here and update.  No news is good news.  As of the last scan three weeks ago, everything is stable.

She remains on Keytruda.  She has been on it just about a year since the cancer returned as Stage 4.
Her main side effect is fatigue. 

She still gets around fine and is self sufficient.  She is looking forward to the holidays and a trip in March to New York.  
So we will continue on this road as long as we can.

Sorry for the delay in updating.

Thanks,

James
The following user(s) said Thank You: Alan, Jack R

Please Log in or Create an account to join the conversation.

1 year 2 days ago #60827 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James,

I still read and absorb all your posts. It is good that things appear to be stable. We are with you in the spirit in this fight. Thanks for the updates. You will never know how many people you're helping.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

1 year 2 days ago #60826 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Had a small development last week.  She has had a bad cough and then trouble breathing.  She also was vomiting some and had a temperature of 100.2.  Spent three days in the hospital last week with pneumonia, but is doing very well now. 

Now for the update.  She had her three month CT (head to pelvis) as well as an entire body bone scan yesterday.  The news is that the spot on her lung (believed to be inflammation) is shrinking.  No new lesions were seen on the CT or bone scans.

She will remain on Keytruda.  Her next infusion is in three weeks.  She will also see a pulmonologist to make sure that the situation last week was pneumonia and not pneumonitis.

As far as her symptoms are concerned, she is very sore and fatigued, but is still completely self sufficient.  Will keep on this path as long as we can. BTW, 94 visits to the doctor and/or hospital now.  

Hopefully no reason to update until the next scans in three months.
The following user(s) said Thank You: Alan

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne