Wife DX with T2 Micropapillary Cancer...

4 months 2 weeks ago #60355 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Quick update. My wife indeed had another round of radiation for the rib pain. They also targeted the other bump on her skull. There were 6 appointments (1 to prepare and then another 5 appointments for the radiation treatments).
We have made 62 treatments to MD Anderson.

So far the continued pain has been manageable with tramadol. Next appointment is with the oncologist in a week for her second Keytruda treatment.

Will update as get more information.

Thanks,

James

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4 months 2 weeks ago #60357 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Thanks for the updates.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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3 months 18 hours ago #60525 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Latest update.

My wife completed three treatments of Keytruda (each three weeks apart).  She met with her oncologist today to review the CT scan she had yesterday (her 12 month scan).  The cancer in her bones appears to have stabilized and no new lesions have been found.  Thus for now the plan is to stay on Keytruda as long as it continues to work.  The Keytruda guidelines now allow a double dose of the infusion administered every six weeks, instead of a single dose every three weeks.  Fewer trips to the hospital will be very nice as we just completed our 66th trip today.

I should also mention that her pain has decreased significantly over the past month.  She still feels fatigue as well as an overall soreness, but it is very manageable with Tramadol.

Okay that should do it for now.  Hopefully will have nothing to report until the next scan in another three weeks.  

Thanks,

James

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3 months 9 hours ago - 3 months 9 hours ago #60527 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James,

Thanks again for your reports! You will never know who and how many people you are helping but, it is a certainty. Glad the Keytruda appears to be working.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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3 hours 18 minutes ago #60745 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Forgot to update three weeks ago.

My wife is still on Keytruda every 6 weeks.   Three weeks ago scans showed cancer was stable for the most part.  A lesion in pelvis and a lung increased in size, but they do not know whether it is the cancer or inflammation from immunotherapy.  She is scheduled to go for more scans in 6 weeks.  This time it will includ a bone scan along with the normal neck to pelvis CT scans.

As far as her symptoms are concerned, she is very sore and fatigued, but is still completely self sufficient.  Will keep on this path as long as we can.


Thanks,

James

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1 hour 13 minutes ago #60747 by sara.anne
Replied by sara.anne on topic Wife DX with T2 Micropapillary Cancer...
You are both fighters!!  Keep it up

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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