Wife DX with T2 Micropapillary Cancer...

1 year 7 months ago #59251 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Exactly 60 days since RC.

1. Lot of progress. No complications. Just gets tired very easily still. Has not returned to work because she is a teacher and would just be too much right now.
2. Changing bag every 3-4 days. I am assisting her with this. Will be a big step when she can do this by herself.
3. CT Scan and oncology checkup moved back because of Corona. Oncologist thought okay since surgery went well.
4. Even though she had the highly aggressive plasmacytoid variant we are very helpful as are her doctors that at stage 3a very good chance now.
4. Will wait to post until after CT Scan or if something out of the ordinary occurs. Thanks to everyone and will continue to check in.


Hope this helps others.

Thanks,

James

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1 year 7 months ago #59218 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Exactly 52 days since RC.

1. Lot of improvement over past week.
2. Constipation has gone away for the most part.
3. Not as exhausted, getting more energy all the time.
4. Did have first leakage today. Switching back to coloplast.
5. Met with urologist that did the surgery for followup. Everything looked good, final stage was 3a with negative margins and clean lymph nodes.
6. First CT Scan and oncologist meeting since surgery coming up in a few weeks, then every 3 months for the foreseeable future.
7. Everything is looking up!


I will post after her first CT Scan later in the month.



Hope this helps others.

Thanks,

James
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1 year 7 months ago #59187 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
++++++++++++++++++++++++++++++++++++!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 7 months ago #59184 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Exactly 42 days since RC.

1. Lot of improvement over past week.
2. Constipation has gone away for the most part.
3. Not as exhausted, but still pretty tired a lot of the time.
4. Had follow up with Wound/Ostomy, everything looking good. Got some bags ordered from Hollister that
are easier to connect to the night bag.
5. She was able to get out of the bathtub by herself for the first time this evening.
6. Everything is looking up, slowly but surely. Urology meeting Monday.


I will continue to post weekly updates through her first CT Scan late in the month.just to continue documenting her process for others.

Hope this helps others.

Thanks,

James

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1 year 7 months ago #59151 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James,

This helps MANY people! Thanks for posting. It is an encouragement and glad the wife's progress is going forward. From the many that have had major surgeries her recuperation should slowly build momentum.

Regards!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 7 months ago #59150 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Been a little more than a week since last post, 34 days since surgery.

1. All of her incisions just about healed.
2. Stoma healing very well.
3. Constipation on and off (taking colaise and eating prunes).
4. Getting around a lot better, but still fatigued super easy.
5. Has not left the house yet as gets tired very easily, but is getting stronger.
6. No unexpected situations.
7. Wound ostomy check up appointment on Monday.
8. Urologist appointment a week after that.


I will continue to post weekly updates from here on out just to continue documenting her process for others.

Hope this helps others.

Thanks,

James
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