Wife DX with T2 Micropapillary Cancer...

1 year 7 months ago #61019 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
We are thankful the update is stable!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 7 months ago #61018 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Been so busy forgot to come on here and update.  No news is good news.  As of the last scan three weeks ago, everything is stable.

She remains on Keytruda.  She has been on it just about a year since the cancer returned as Stage 4.
Her main side effect is fatigue. 

She still gets around fine and is self sufficient.  She is looking forward to the holidays and a trip in March to New York.  
So we will continue on this road as long as we can.

Sorry for the delay in updating.

Thanks,

James
The following user(s) said Thank You: Alan, Jack R

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1 year 11 months ago #60827 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James,

I still read and absorb all your posts. It is good that things appear to be stable. We are with you in the spirit in this fight. Thanks for the updates. You will never know how many people you're helping.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 11 months ago #60826 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Had a small development last week.  She has had a bad cough and then trouble breathing.  She also was vomiting some and had a temperature of 100.2.  Spent three days in the hospital last week with pneumonia, but is doing very well now. 

Now for the update.  She had her three month CT (head to pelvis) as well as an entire body bone scan yesterday.  The news is that the spot on her lung (believed to be inflammation) is shrinking.  No new lesions were seen on the CT or bone scans.

She will remain on Keytruda.  Her next infusion is in three weeks.  She will also see a pulmonologist to make sure that the situation last week was pneumonia and not pneumonitis.

As far as her symptoms are concerned, she is very sore and fatigued, but is still completely self sufficient.  Will keep on this path as long as we can. BTW, 94 visits to the doctor and/or hospital now.  

Hopefully no reason to update until the next scans in three months.
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2 years 4 weeks ago #60747 by sara.anne
Replied by sara.anne on topic Wife DX with T2 Micropapillary Cancer...
You are both fighters!!  Keep it up

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 years 4 weeks ago #60745 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Forgot to update three weeks ago.

My wife is still on Keytruda every 6 weeks.   Three weeks ago scans showed cancer was stable for the most part.  A lesion in pelvis and a lung increased in size, but they do not know whether it is the cancer or inflammation from immunotherapy.  She is scheduled to go for more scans in 6 weeks.  This time it will includ a bone scan along with the normal neck to pelvis CT scans.

As far as her symptoms are concerned, she is very sore and fatigued, but is still completely self sufficient.  Will keep on this path as long as we can.


Thanks,

James

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