My wife is now able to change bag by herself. She is able to drive over 6 hours to see her family. She has become accustomed to her new normal. Every day she is grateful to still be cancer free. Next checkup is the 6 month scan on Aug 13/14.
Progress! James, be assured you are helping everyone that passes by the site. M. D. Anderson is an amazing hospital and the staff is world class. Thanks. While I have not had to use them, living in New Braunfels they are my backup.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
I figured I would update for future reference for others.
To review, my wife was diagnosed with muscle invasive bladder cancer stage T2a. The pathology showed that it was the rare variant plasmacytoid. After 4 rounds of chemotherapy (gem/cis) the cancer was unresponsive and chemotherapy was cut short. An RC was performed at M.D. Anderson in January. The pathology showed no lymph node involvement and no positive margins, but the cancer was upstaged to 3a.
Fast forward to 3 1/2 months after surgery, with the exception of a rash around the stoma everything has been going well. There was a lot of constipation, but it has improved as well.
The 3 month checkup (CT Scan/blood work) showed that the cancer has not returned.
Will have the next checkup at the 6 month mark, will update then.