Wife DX with T2 Micropapillary Cancer...

1 year 5 months ago #58647 by JamesF
Hello,

My wife dx with T2 Micropapillary cancer in September. She has completed 3 cycles of chemo. The first one was CisGem, the remaining two were Gem.Taxol. The fourth cycle will be this coming Friday and I believe will be CisGem now that has he kidney function has returned to normal.

After the fourth cycle has been completed they are going to restage to determine plan from there.

We are located in Houston and she is being treated at M.D. Anderson.

All of this sound like we are on the right track?

Thanks in advance.

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1 year 5 months ago #58648 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Welcome JamesF,

We are always sorry one has a need for this forum but, we journey together. I live in New Braunfels and can vouch for MD Anderson. They are my backup if another reason ever comes up again. I have had 4 or 5 friends/aquaintenances use MD and they are all happy with their treatment. With micropapillary tumors you are probably aware this is a rare type and very serious. You are in good hands. please post as needed as we all learn from each other.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 year 5 months ago #58649 by Jack R
Replied by Jack R on topic Wife DX with T2 Micropapillary Cancer...
JamesF,

You and your wife could not be at a better place.

It is important to be at a place like MDA that is on top of the latest information AND maintains their focus on the patient and family. More so with a high grade, less common variant.

It appears that your wife is being treated aggressively and without delay, which seems appropriate for her diagnosis.

Following the re-staging, you will likely receive a treatment recommendation vetted by the MDA tumor board. Again, a great group to have reviewing the options.

Absolutely the right track.

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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1 year 5 months ago #58650 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Thanks for the responses.

Will get through Cycle 4 then Cystoscope/CT Scan and report back the updated staging.


Thanks again,

JamesF

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1 year 4 months ago #58744 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Cycle 4 and CT Scan completed. Unfortunately the chemo was not effective. The tumor has continued to thicken. Will undergo another cycle of chemo in about a week to try to buy time until the bladder removal surgery can be coordinated.

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1 year 4 months ago #58747 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Thanks for the update. MD Anderson is still the best for beating this disease.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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