Wife DX with T2 Micropapillary Cancer...

2 weeks 1 day ago - 2 weeks 1 day ago #60527 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James,

Thanks again for your reports! You will never know who and how many people you are helping but, it is a certainty. Glad the Keytruda appears to be working.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 weeks 1 day ago #60525 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Latest update.

My wife completed three treatments of Keytruda (each three weeks apart).  She met with her oncologist today to review the CT scan she had yesterday (her 12 month scan).  The cancer in her bones appears to have stabilized and no new lesions have been found.  Thus for now the plan is to stay on Keytruda as long as it continues to work.  The Keytruda guidelines now allow a double dose of the infusion administered every six weeks, instead of a single dose every three weeks.  Fewer trips to the hospital will be very nice as we just completed our 66th trip today.

I should also mention that her pain has decreased significantly over the past month.  She still feels fatigue as well as an overall soreness, but it is very manageable with Tramadol.

Okay that should do it for now.  Hopefully will have nothing to report until the next scan in another three weeks.  

Thanks,

James

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2 months 1 day ago #60357 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Thanks for the updates.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 months 1 day ago #60355 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Quick update. My wife indeed had another round of radiation for the rib pain. They also targeted the other bump on her skull. There were 6 appointments (1 to prepare and then another 5 appointments for the radiation treatments).
We have made 62 treatments to MD Anderson.

So far the continued pain has been manageable with tramadol. Next appointment is with the oncologist in a week for her second Keytruda treatment.

Will update as get more information.

Thanks,

James

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2 months 3 weeks ago #60228 by sara.anne
Replied by sara.anne on topic Wife DX with T2 Micropapillary Cancer...
We will keep our fingers crossed, James. These new immunotherapy drugs can have amazing results.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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2 months 3 weeks ago #60227 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Met with our oncologist today. She is very concerned with how rapid the second bump on the skull has grown. She decided it is best to begin immunotherapy immediately, so my wife received the first treatment of Pembrolizumab this afternoon. The treatment took less than an hour. She will have a treatment every three weeks. The efficacy of the treatments will be analyzed several weeks after her third installment. Chemotherapy was not prescribed because it was ineffective the first go around before RC, as well as the fact that my wife did not tolerate it very well.

She may have additional radiation treatments for the second bump on her skull as well as her ribs as she is experiencing a lot of rib pain at night. The radiation treatment on her spine seems to have reduced the pain at that location somewhat. She is currently taking Tramadol for the pain.

Okay that should be it for the next few weeks. Will update then unless there are other developments.

Thanks,

James

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