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Wife DX with T2 Micropapillary Cancer...

1 week 5 days ago #59252 by Alan
Incredible diary. I am sure yu have helped many others. Thanks. Most importantly, I am glad the wife is getting better!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 week 6 days ago #59251 by JamesF
Exactly 60 days since RC.

1. Lot of progress. No complications. Just gets tired very easily still. Has not returned to work because she is a teacher and would just be too much right now.
2. Changing bag every 3-4 days. I am assisting her with this. Will be a big step when she can do this by herself.
3. CT Scan and oncology checkup moved back because of Corona. Oncologist thought okay since surgery went well.
4. Even though she had the highly aggressive plasmacytoid variant we are very helpful as are her doctors that at stage 3a very good chance now.
4. Will wait to post until after CT Scan or if something out of the ordinary occurs. Thanks to everyone and will continue to check in.


Hope this helps others.

Thanks,

James

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3 weeks 5 hours ago #59218 by JamesF
Exactly 52 days since RC.

1. Lot of improvement over past week.
2. Constipation has gone away for the most part.
3. Not as exhausted, getting more energy all the time.
4. Did have first leakage today. Switching back to coloplast.
5. Met with urologist that did the surgery for followup. Everything looked good, final stage was 3a with negative margins and clean lymph nodes.
6. First CT Scan and oncologist meeting since surgery coming up in a few weeks, then every 3 months for the foreseeable future.
7. Everything is looking up!


I will post after her first CT Scan later in the month.



Hope this helps others.

Thanks,

James

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4 weeks 2 days ago #59187 by Alan
++++++++++++++++++++++++++++++++++++!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 month 4 hours ago #59184 by JamesF
Exactly 42 days since RC.

1. Lot of improvement over past week.
2. Constipation has gone away for the most part.
3. Not as exhausted, but still pretty tired a lot of the time.
4. Had follow up with Wound/Ostomy, everything looking good. Got some bags ordered from Hollister that
are easier to connect to the night bag.
5. She was able to get out of the bathtub by herself for the first time this evening.
6. Everything is looking up, slowly but surely. Urology meeting Monday.


I will continue to post weekly updates through her first CT Scan late in the month.just to continue documenting her process for others.

Hope this helps others.

Thanks,

James

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1 month 1 week ago #59151 by Alan
James,

This helps MANY people! Thanks for posting. It is an encouragement and glad the wife's progress is going forward. From the many that have had major surgeries her recuperation should slowly build momentum.

Regards!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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