Wife DX with T2 Micropapillary Cancer...

1 week 3 days ago #61305 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Thanks for the updates. You ARE helping people!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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1 week 3 days ago #61304 by sara.anne
Replied by sara.anne on topic Wife DX with T2 Micropapillary Cancer...
Thanks so much for keeping us informed, James.  She is a real inspiration to many and I am so glad to hear that she is doing so well.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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1 week 4 days ago #61302 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Had some low counts on blood since the last scans three months ago so she had a bone biopsy. All came out negative and her counts have improved slightly.

Just got news today that the latest scans came in stable again.

She remains on Keytruda and has been on it 20 months since her cancer returned as Stage 4 in November 0f 2020.  She had her RC January of 2020.

Her main side effect is still soreness/fatigue. 

She still gets around fine and is self sufficient.  Next big milestone will be July 4th as her family is coming to visit.

Every day is a great day.  We will continue on this road as long as we can.



Thanks,

James
The following user(s) said Thank You: Alan

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2 months 2 weeks ago #61260 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Inspiring to all of us.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 months 2 weeks ago #61259 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Scan stable again.

She remains on Keytruda.  She has been on it 17 months since her cancer returned as Stage 4
and over two years since her radical cystectomy.  Her main side effect is still fatigue. 

She still gets around fine and is self sufficient.  She was able to go on her trip to New York.  Next week Easter with family in La.  Next big milestone will be July for a trip home to see family.

Every day is a great day.  We will continue on this road as long as we can.



Thanks,

James
The following user(s) said Thank You: Alan

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4 months 3 weeks ago #61177 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
JamesF,

Thanks again. Glad all is stable!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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