Progress! James, be assured you are helping everyone that passes by the site. M. D. Anderson is an amazing hospital and the staff is world class. Thanks. While I have not had to use them, living in New Braunfels they are my backup.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
I figured I would update for future reference for others.
To review, my wife was diagnosed with muscle invasive bladder cancer stage T2a. The pathology showed that it was the rare variant plasmacytoid. After 4 rounds of chemotherapy (gem/cis) the cancer was unresponsive and chemotherapy was cut short. An RC was performed at M.D. Anderson in January. The pathology showed no lymph node involvement and no positive margins, but the cancer was upstaged to 3a.
Fast forward to 3 1/2 months after surgery, with the exception of a rash around the stoma everything has been going well. There was a lot of constipation, but it has improved as well.
The 3 month checkup (CT Scan/blood work) showed that the cancer has not returned.
Will have the next checkup at the 6 month mark, will update then.
1. Lot of progress. No complications. Just gets tired very easily still. Has not returned to work because she is a teacher and would just be too much right now.
2. Changing bag every 3-4 days. I am assisting her with this. Will be a big step when she can do this by herself.
3. CT Scan and oncology checkup moved back because of Corona. Oncologist thought okay since surgery went well.
4. Even though she had the highly aggressive plasmacytoid variant we are very helpful as are her doctors that at stage 3a very good chance now.
4. Will wait to post until after CT Scan or if something out of the ordinary occurs. Thanks to everyone and will continue to check in.
1. Lot of improvement over past week.
2. Constipation has gone away for the most part.
3. Not as exhausted, getting more energy all the time.
4. Did have first leakage today. Switching back to coloplast.
5. Met with urologist that did the surgery for followup. Everything looked good, final stage was 3a with negative margins and clean lymph nodes.
6. First CT Scan and oncologist meeting since surgery coming up in a few weeks, then every 3 months for the foreseeable future.
7. Everything is looking up!
I will post after her first CT Scan later in the month.