Wife DX with T2 Micropapillary Cancer...

3 months 2 weeks ago #62060 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Thanks once again! Your comment about going 1-2 times a year is very interesting development. You are helping a lot of people by posting!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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3 months 2 weeks ago #62059 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Latest 3 month checkup last Monday. The scans were stable once again!

She remains on Keytruda and has been on it since her cancer returned as Stage 4 in November 0f 2020.  She was originally diagnosed in August 2019 with muscle invasive plasmacytoid bladder cancer.  She had her RC January of 2020.  

Her main side effect is still soreness/fatigue.  She still gets around fine and is self sufficient.  

There has been one interesting development.  Because of the severity of the side effects, fatigue, joint pain, possibly exacerbation of COPD, etc. she is considering reducing the frequency or discontinuing infusions. Her oncologist stated that studies show that once on two years of Keytruda that the body should be trained to fight off the cancer. She will make that decision over the holidays.

Every day is a great day.  Will report back in three months, hopefully nothing worth reporting until then.


Thanks,

James
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4 months 4 weeks ago #61991 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James,

Thanks for the report and congratulations on the good news.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 months 5 hours ago #61990 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Sorry for the late 3 month checkup report. The scans were stable once again!

She remains on Keytruda and has been on it since her cancer returned as Stage 4 in November 0f 2020.  She as originally diagnosed in August 2019 with muscle invasive plasmacytoid bladder cancer.  She had her RC January of 2020.  

Her main side effect is still soreness/fatigue.  She still gets around fine and is self sufficient.  

Unfortunately she has also been diagnosed with moderate COPD.  Her symptoms are coughing and shortness of breath.  She is on an inhaler.  She is not on oxygen as her oxygen level stays around 95%. Her oncologist is not sure if the Keytruda is exacerbating the COPD.  It may be a balancing act as far as continuing the immunotherapy while watching the COPD closely.


Every day is a great day.  Will report back in three months, hopefully nothing worth reporting until then.


Thanks,

James

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8 months 4 weeks ago #61805 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Thanks again JamesF for updating us about your journey glad. I am about the good report.  All I can add is MD Anderson has an amazing bladder cancer center!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 months 5 hours ago #61804 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Well time for the latest 3 month scan update.  The scans were stable once again!

She did have an interesting event occur a month ago.  The area around her stoma became irritated and started bleeding profusely.  Her ostomy bag filled with blood in short order.  She was transported via ambulance to the nearest hospital where they were able to stop the bleeding by cauterizing the wound.  Since that time she has met with the ostomy nurse at MD Anderson and the wound is slowly looking better.  It was a very scary experience for her as she was visiting her family out of state when the situation occurred.

She remains on Keytruda and has been on it since her cancer returned as Stage 4 in November 0f 2020.  She had her RC January of 2020.  

Her main side effect is still soreness/fatigue.  

She still gets around fine and is self sufficient.  

Every day is a great day.  Will report back in three months, hopefully nothing worth reporting until then.


Thanks,

James
The following user(s) said Thank You: joea73

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