Wife DX with T2 Micropapillary Cancer...

3 months 1 day ago #60827 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James,

I still read and absorb all your posts. It is good that things appear to be stable. We are with you in the spirit in this fight. Thanks for the updates. You will never know how many people you're helping.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

3 months 1 day ago #60826 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Had a small development last week.  She has had a bad cough and then trouble breathing.  She also was vomiting some and had a temperature of 100.2.  Spent three days in the hospital last week with pneumonia, but is doing very well now. 

Now for the update.  She had her three month CT (head to pelvis) as well as an entire body bone scan yesterday.  The news is that the spot on her lung (believed to be inflammation) is shrinking.  No new lesions were seen on the CT or bone scans.

She will remain on Keytruda.  Her next infusion is in three weeks.  She will also see a pulmonologist to make sure that the situation last week was pneumonia and not pneumonitis.

As far as her symptoms are concerned, she is very sore and fatigued, but is still completely self sufficient.  Will keep on this path as long as we can. BTW, 94 visits to the doctor and/or hospital now.  

Hopefully no reason to update until the next scans in three months.
The following user(s) said Thank You: Alan

Please Log in or Create an account to join the conversation.

4 months 2 weeks ago #60747 by sara.anne
Replied by sara.anne on topic Wife DX with T2 Micropapillary Cancer...
You are both fighters!!  Keep it up

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

4 months 2 weeks ago #60745 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Forgot to update three weeks ago.

My wife is still on Keytruda every 6 weeks.   Three weeks ago scans showed cancer was stable for the most part.  A lesion in pelvis and a lung increased in size, but they do not know whether it is the cancer or inflammation from immunotherapy.  She is scheduled to go for more scans in 6 weeks.  This time it will includ a bone scan along with the normal neck to pelvis CT scans.

As far as her symptoms are concerned, she is very sore and fatigued, but is still completely self sufficient.  Will keep on this path as long as we can.


Thanks,

James

Please Log in or Create an account to join the conversation.

7 months 2 weeks ago - 7 months 2 weeks ago #60527 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James,

Thanks again for your reports! You will never know who and how many people you are helping but, it is a certainty. Glad the Keytruda appears to be working.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

7 months 2 weeks ago #60525 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Latest update.

My wife completed three treatments of Keytruda (each three weeks apart).  She met with her oncologist today to review the CT scan she had yesterday (her 12 month scan).  The cancer in her bones appears to have stabilized and no new lesions have been found.  Thus for now the plan is to stay on Keytruda as long as it continues to work.  The Keytruda guidelines now allow a double dose of the infusion administered every six weeks, instead of a single dose every three weeks.  Fewer trips to the hospital will be very nice as we just completed our 66th trip today.

I should also mention that her pain has decreased significantly over the past month.  She still feels fatigue as well as an overall soreness, but it is very manageable with Tramadol.

Okay that should do it for now.  Hopefully will have nothing to report until the next scan in another three weeks.  

Thanks,

James

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne