Wife DX with T2 Micropapillary Cancer...

2 weeks 4 days ago #61805 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Thanks again JamesF for updating us about your journey glad. I am about the good report.  All I can add is MD Anderson has an amazing bladder cancer center!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 weeks 5 days ago #61804 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Well time for the latest 3 month scan update.  The scans were stable once again!

She did have an interesting event occur a month ago.  The area around her stoma became irritated and started bleeding profusely.  Her ostomy bag filled with blood in short order.  She was transported via ambulance to the nearest hospital where they were able to stop the bleeding by cauterizing the wound.  Since that time she has met with the ostomy nurse at MD Anderson and the wound is slowly looking better.  It was a very scary experience for her as she was visiting her family out of state when the situation occurred.

She remains on Keytruda and has been on it since her cancer returned as Stage 4 in November 0f 2020.  She had her RC January of 2020.  

Her main side effect is still soreness/fatigue.  

She still gets around fine and is self sufficient.  

Every day is a great day.  Will report back in three months, hopefully nothing worth reporting until then.


Thanks,

James
The following user(s) said Thank You: joea73

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3 months 6 days ago #61673 by sara.anne
Replied by sara.anne on topic Wife DX with T2 Micropapillary Cancer...
That was really good news.  Your wife deserves a "Hero" badge...and you deserve one also!

We always hear about bad side effects of drugs.  Unfortunately, there are "good" ones also.  Feeling good is one bad/good side effect of steroids.  And patients don't want to go off them for this reason and then the bad side effects set in.

Keep up the good work..........

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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3 months 6 days ago #61672 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
Every day IS a great day! Thanks.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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3 months 1 week ago #61671 by JamesF
Replied by JamesF on topic Wife DX with T2 Micropapillary Cancer...
Well we had an interesting event take place during this past three  month period.  About a  month ago my wife had a cough that would not go away.  She then started having shortness of breath and an elevated heart rate.  Her doctor had her go to the ER at MD Anderson.  After a four day stay in the hospital they sent her home with oxygen and steroids.  As of the time of this writing she has completed her steroids and uses the oxygen rarely.  They never did get to the bottom of the illness, they think possibly COPD or asthma.

Now as far as her scans.  They did two of the three scans while she was in the hospital.  The following scan was completed a week later as usual.  All three scans were in fact clean, no changes.

Before her next appointment she will have a bone scan. They are a little concerned about her elevated heart rate as it is regularly  120-130 with little exertion.

She remains on Keytruda and has been on it 28 months since her cancer returned as Stage 4 in November 0f 2020.  She had her RC January of 2020.  

Her main side effect is still soreness/fatigue.  NOTE: She felt great while on steroids.

She still gets around fine and is self sufficient.  In fact she has recently started driving again.  Her first trip was to the grocery this week.  
Her next milestone will be Easter.

Every day is a great day.  Will report back in three months, hopefully nothing worth reporting until then.



Thanks,

James

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6 months 1 week ago #61478 by Alan
Replied by Alan on topic Wife DX with T2 Micropapillary Cancer...
James, thanks. Very positive and hope for all.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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