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THE PATH TO RC

7 years 1 month ago #53015 by Jack R
Replied by Jack R on topic THE PATH TO RC
Lotech (and Belle)

Wishing the best for both of you as you start down the chemo track. Good to see you are working to get in the best shape possible before going in for the bladder R&R. We will be watching for updates, keep us posted.

Best,
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
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7 years 1 month ago #53014 by lotech35
Replied by lotech35 on topic THE PATH TO RC
Day after first chemo, still some nausea tolerabal with the meds, but still there. I walked for an hour today so that was hard! out of shape, But it will get better, I'm still in good spirits! feel tired, but I'm not gonna live in my bedroom!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
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7 years 1 month ago #53012 by sara.anne
Replied by sara.anne on topic THE PATH TO RC
You know we are all there with you!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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7 years 1 month ago #53011 by lotech35
Replied by lotech35 on topic THE PATH TO RC
1st Chemo treatment feel lousy, a little head ache and tired. The treatment itself wasnt bad but e en when i get the contrast for a CT scan i get light headed. Same with the chemo.
Its been a few hours and lots of water i feel a little better. I start my antinausea meds tomorrow. Heres hoping.
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

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7 years 1 month ago #52990 by lotech35
Replied by lotech35 on topic THE PATH TO RC
Belle2000,

I am also starting my chemo next wed Mar 22 for 4 months then an RC, I know your fear. But its something we must do. Im scared and mad, and etc...Again its something we have to do! know that you arent doing this alone. You keep me posted and I'll do same we can get thru this!
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

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7 years 1 month ago #52980 by Cynthia
Replied by Cynthia on topic THE PATH TO RC
Hi Belle, When I was 48 I started my bladder cancer journey. Since then I have seen what you are facing an RC and chemo. That is far behind me I am now 60 and doing and have adjusted well and live a normal life. You just have to keep your eyes on the ball by that I mean you look at every treatment every procedure as a step to getting well. I remember being where you are now how terrified I was feeling as if the world had tilted and it had for me and my loved ones at least. I dealt with depression and panic attacks a good therapist and temporary medication helped a lot. Deal with one thing at a time and we are here for you ask questions and vent to you can do that with us we understand. And one day I predict you will be sitting at your computer writing a similar post to the new kid on the block like I am writing this to you.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
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