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THE PATH TO RC

3 years 2 months ago #53184 by lotech35
Well,
5 days after 2nd chemo, i was pretty much bed ridden. They still gave me half the steroid dose and pepcid but i still felt dizzy and nauseous. Not as bad as last time but still didnt want to move around much. Right now im not to bad, slight headache,fatigue, and tummy tolerates small amounts of food during the day. Taking boost drinks . My next treatment is this Thursday! Hopefully the Docs and I can find a happy medium.

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....

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3 years 2 months ago #53128 by Sean T
My hat it off to all of you.

08/16/16 - TURBT - 1 tumor, T1HG, 7.5 cm x 7.5 cm x 1.8 cm, non-invasive papillary.
BCG treatments (15 rounds total - last March, 2018). As of latest cysto, Dec 10, 2019 - cancer free!
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3 years 3 months ago #53066 by Jack R
Lotech,

What a way to start chemo! Good to hear you are on the mend. It seems that there are many unforeseen twists and turns remaining on the path to beating this disease. Hang tough, we are rooting for ya.

Bestest
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back...
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3 years 3 months ago #53065 by lotech35
Well im in the hospital, i had a reaction to the steroids they gave me. Shut dowm my digestive system, very painful bloating! 2 days later feeling better. It was my first treatment! Hopefiully next wont be as dramatic! Still pushing the positive!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....

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3 years 3 months ago #53019 by Alan
LoTech,

Thanks again for posting as we all learn from each other plus one never knows when we will turn down your road!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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3 years 3 months ago #53018 by lotech35
NeoAdjuvant Chemo as Im told is to get any cancer that may be floating out there, after that the RC removes the source I believe, As far as you type of diversion, they tell me it depends on when the go in to see what is best suited for you, I told I'm a good candidate for neo but still depends on what happens during surgery, could end up with a indiana pouche or external appliance, bottom line for me is being able to urinate with out pain and fear of cancer so what ever it takes I'm in! its not easy even as I write this I feel out of it but it helps to get it out there, hang in there cause I will! Cynthia has had an RC

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....

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